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Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.
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And HPU. To me, he seems brilliant in some ways, completely off the mark in others, and by the sound of it, pretty money hungry. I would be interested to hear from people who have actually been treated by him himself.
Thanks for posting this, Dufresne. Have you tried this protocol? If so, did it seem to help or did you have side effects? Where do you buy the supplements? I recently had a DNA stool test for parasites (MetaMetrix) and the results said there were no parasites. It may be that they just don't all show up on a stool test.
But it seems odd for him to say that all CFS is caused by parasites when many of us (me included) had an acute viral infection that started it.
You can get the drugs from http://www.alldaychemist.com/. I had mine shipped to a friend in the States and then on up to Canada. (Bear in mind that the American lobbyists are trying to make it impossible for folks to order their drugs in from the outside, so you might want to do this while you still can.) I've a lot of problems tolerating drugs and herbs so I'm not the right guy to be commenting on the protocol. I've really only been able to toy with it a bit.
Klinghardt is also big on Mimosa Pudica, which you can get through Hopkington Drug http://www.rxandhealth.com/. I had some die-off the first day taking this, so I know it works somewhat.
I too did the Metametrix test for critters. It turned up nothing except h. pylori, and "parasite present, taxonomy unknown" which I understand is a pretty common finding. They downplay this by essentially saying, it must have been something you ate. But who knows?
What's worked best for my gut health is fermented foods. Essentially I'm following the GAPS diet and eating yogurt, kefir, and sauerkraut. This is something I started before the parasite protocol and Metametrix test, but after the Mimosa Pudica. I used to experience die-off from a homeopathic anti-parasitic, but since introducing the fermented foods I've had none. While this has helped my ankylosing spondylitis oodles, it's done nothing to better my ME/CFS.
Be careful with www.alldaychemist.com they have sold my email address to spammers, I know this because it was a brand new email address who no one else had, only them. And am being constantly bombarded with spam emails using the exact delivery name and address.
I have cancelled the funding credit card and have reported this issue to a Governing body.
Will not be surprised if they attempt to have this post removed, as they have tried doing so on the 4 or 5 review sites I have also posted this issue on.
We have enough problems dealing with our illness. Scummy pharmacies are not appreciated.