Lipkin's Monster ME/CFS Study: Microbes, Immunity & Big Data
The Microbe Discovery Project outlines an ambitious new study by top researchers that has collected patient samples, but needs desperately funds to complete the work.
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Good NPR article on Shots blog

Discussion in 'General ME/CFS News' started by viggster, Nov 4, 2015.

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  1. viggster

    viggster Senior Member

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  2. Denise

    Denise Senior Member

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  3. viggster

    viggster Senior Member

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    Oh I missed that, thanks.
     
  4. Ecoclimber

    Ecoclimber Senior Member

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  5. WillowJ

    WillowJ คภภเє ɠรค๓թєl

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    WA, USA
    She stopped writing when some people wrote to her and asked her not to use CAA as the main source of patient remarks. Everyone was a bit annoyed with CAA at the time for some remarks they had made in the press (not anything Amy wrote, I don't think) which seemed to trivialize the illness. I'm not sure how to rebuild this bridge with Amy Dockser Marcus.
     
    Valentijn, snowathlete and halcyon like this.
  6. Kati

    Kati Patient in training

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    Patients can be their own enemies. That's very unfortunate. We as a group have to choose our battles very wisely. Even Hillary Johnson was impressed by the new direction of CAA. Things are changing rapidly. What are the most important issues? In my opinion,
    1) research is a big one and research funding
    2) Biomarker. Who finds it does not matter much to me.
    3) Access to FDA approved drug.
    4) disease assigned to a medical specialty, not psychiatry and not a weird one either, like "environmental illness".
     
    meadowlark and BurnA like this.
  7. Never Give Up

    Never Give Up Collecting improvements, until there's a cure.

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    What is CAA, please?
     
  8. halcyon

    halcyon Senior Member

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    CFIDS Association of America. Old name for Solve ME/CFS Initiative.
     
    Never Give Up likes this.
  9. Never Give Up

    Never Give Up Collecting improvements, until there's a cure.

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    Ah, thank you.
     
  10. Kina

    Kina

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    Sofa, UK
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