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    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of and finding treatments for complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia (FM), long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

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Free ebook, CFS treatment guide

Merry

Senior Member
Messages
1,378
Location
Columbus, Ohio, USA
Once again, Erica Verrillo, author of Chronic Fatigue Syndrome: A Treatment Guide, is offering the 2nd edition of her ebook for free. Download it at Amazon.com on the 19th and 20th of January.

This is the email I received from her yesterday:

FREE BOOK! On January 19th and January 20th, 2013, Amazon.com will be giving away free copies of Chronic Fatigue Syndrome: A Treatment Guide, 2ndEdition. Dr. Charles Lapp calls this “the book every patient should have.” The book includes over 100 effective treatments, spanning the full range of pharmaceutical and complementary modalities, an in-depth discussion of symptoms with cross-referencing to appropriate treatments, the latest research into the causes and mechanisms of the illness, doctors' protocols, coping techniques, special sections for managing chemical sensitivities, dietary restrictions and the special needs of children, as well as extensive appendices covering resources, locations of doctors and clinics, local, national and international organizations, and internet ordering information. The book also features over 2600 useful links to further reading, research articles, and patient reviews.

A Kindle is not needed to read this book! Amazon provides free apps that allow eBooks to be read on computers, iPads, phones and other devices.

For more information go to: http://www.cfstreatmentguide.com
 
I bought this book three weeks ago and it's been like a prayer answered. Now the author is giving it away! Don't miss this!

"FREE BOOK! On January 19th and January 20th, 2013, Amazon.com will be giving away free copies of Chronic Fatigue Syndrome: A Treatment Guide, 2nd Edition. Dr. Charles Lapp calls this “the book every patient should have.” The book includes over 100 effective treatments, spanning the full range of pharmaceutical and complementary modalities, an in-depth discussion of symptoms with cross-referencing to appropriate treatments, the latest research into the causes and mechanisms of the illness, doctors' protocols, coping techniques, special sections for managing chemical sensitivities, dietary restrictions and the special needs of children, as well as extensive appendices covering resources, locations of doctors and clinics, local, national and international organizations, and internet ordering information. The book also features over 2600 useful links to further reading, research articles, and patient reviews.

A Kindle is not needed to read this book! Amazon provides free apps that allow eBooks to be read on computers, iPads, phones and other devices.

For more information go to: http://www.cfstreatmentguide.com"
 

Seven7

Seven
Messages
3,444
Location
USA
I got the book, and I wished I had this when I first got sick, it would of have saved me a lot of Internets hours researching!!
 

LaurieL

Senior Member
Messages
447
Location
Midwest
I missed the free version, but I don't mind supporting the writer a bit, so I bought the version for PC with the downloadable app for the kindle functions. Thanks all for the information and the links!!

Lauriel
 

patient.journey

Senior Member
Messages
443
Please help me i cant download this book cause its am living in the middle east !!!

Can any one send it to me ?
 

Merry

Senior Member
Messages
1,378
Location
Columbus, Ohio, USA
Please help me i cant download this book cause its am living in the middle east !!!

Can any one send it to me ?

Hi, Omar88. Anyone who downloads the ebook can share it with one person for 14 days. The person who loans it would need your email address; the transaction takes place at the Amazon website. I have already loaned mine to someone. Anyone willing to loan the book to Omar?

I will contact Erica Verrillo about your problem and see if she can offer a solution.
 

Merry

Senior Member
Messages
1,378
Location
Columbus, Ohio, USA
What is this book offering that your CFS doctor isn't in terms of treatment available?

Hello, Katherine. The book covers the protocols offered to patients by various ME/CFS specialists in the US. It also addresses what treatments that may help the many symptoms that people with ME/CFS suffer from.
 
Messages
81
Hello, Katherine. The book covers the protocols offered to patients by various ME/CFS specialists in the US. It also addresses what treatments that may help the many symptoms that people with ME/CFS suffer from.

Hi Merry :)
I'm sure this book has its merits, but a cure is needed, not another book. I don't doubt that the authors' hearts are in the right place.

Dan Peterson - I am going to recommend this book to every new patient I see.

Let's hope this is not the future for CFS patients.
 

xchocoholic

Senior Member
Messages
2,947
Location
Florida
The book includes over 100 effective treatments, spanning the full range of pharmaceutical and complementary modalities, an in-depth discussion of symptoms with cross-referencing to appropriate treatments, the latest research into the causes and mechanisms of the illness, doctors' protocols, coping techniques, special sections for managing chemical sensitivities, dietary restrictions and the special needs of children, as well as extensive appendices covering resources, locations of doctors and clinics, local, national and international organizations, and internet ordering information. The book also features over 2600 useful links to further reading, research articles, and patient reviews.

Hi Merry,

I'd like to know the details in this book without reading the whole bood. Is there a way to scan this info ? thanks ... x
 

Merry

Senior Member
Messages
1,378
Location
Columbus, Ohio, USA
Hi Merry,

I'd like to know the details in this book without reading the whole bood. Is there a way to scan this info ? thanks ... x

Here's the table of contents:

CHAPTER 1: WHAT IS CFS/ME? AN OVERVIEW
Introduction, Distinctive Features, Signs and Symptoms, CFS/ME Defined: A Multisystem Disorder, Subtypes and Stages
Historical Background: Epidemics, Outbreaks and Recent Developments
Prognosis and Recovery
Diagnosis: Summaries of Case Definitions; Making a Diagnosis, Tests, Objective Measurements, Specific Tests, Hope for a Biomarker, Full Case Definitions: CDC Guidelines for the Evaluation and Study of CFS (1994) (“Fukuda”), Canadian Criteria (2003), Myalgic Encephalomyelitis: International Consensus Criteria (2011), Oxford Criteria (1991)
In Search of a Cause: Viruses, Bacteria, Mold, Environmental Causes, Genetic Theories, Historical Lessons

CHAPTER 2: MECHANISMS AND THEORIES
Introduction: How Does CFS/ME Work?
The Endocrine System
The Nervous System and Dr. Goldstein's Limbic Hypothesis
Immune Dysfunction
Vascular System and Diastolic Dysfunction
Digestive System
Oxidative Stress and Pall's NO/ONOO‾ Hypothesis
Glutathione Depletion - Methylation Block Hypothesis
Mitochondrial Failure
Channelopathies
Cause and Effect: Putting it All Together
PROTOCOLS
Introduction, Websites that list or compare protocols
Bateman Protocol
Enlander Protocol
Hunter-Hopkins Protocol
Pall Protocol
Teitelbaum Protocol
Van Konynenburg/Yasko Methylation Protocol
CFS Treatment Guide Verrillo/3

CHAPTER 3: SYMPTOMS
Introduction: How to Assess and Monitor Symptoms
Allergies: Airborne Allergens: Pollen, Mold, Animal Dander, Fur and Feathers, Dust, Food
Chemical Sensitivities: Indoor Chemical Air Contaminants, Outdoor Chemical Air Contaminants, Drugs and Medications, Clothing and Personal Care Products
Candida
Cardiac and Cardiovascular Symptoms/Dysautonomia: Blood Circulation; Dysautonomia, Orthostatic Intolerance, POTS, NMH, Shortness of Breath/Air Hunger
Cognitive and Emotional Problems: Loss of Concentration, Short-Term Memory Impairment, Multitasking and Sequencing, Linguistic Reversals, Word Searching, Math Problems, Emotional Problems
Digestive Disturbances: Esophagus: Spasm, Difficulty Swallowing, Loss of Appetite, Reflux/Heartburn; Stomach: Nausea, Small Intestine: Permeable Intestine (Leaky Gut), SIBO, Large Intestine: IBS, Gas, Diarrhea, Constipation; Rectum/Prostalgia Fugax, Tenesmus; Gallbladder; Liver
Dizziness and Vertigo
Endocrine Disturbances: Thyroid; Adrenal Glands
Fatigue: Postexertional Fatigue; Lethargy; Agitated Exhaustion
Flu-Like Symptoms: Sore Throat, Tender Lymph Nodes, Fever and Chills, Sweats
Gynecological Problems: Irregular Periods/Perimenopause/Early Menopause, Osteoporosis, PMS, Endometriosis
Headaches: Migraine Headaches, Sinus Headaches, Tension Headaches
Hearing Problems: Hyperacuity, Tinnitus, Pain, Itching, Hearing Loss
Hypoglycemia
Joint Problems: Gelling, Pain
Loss of Libido
Muscle Problems: Weakness (Paresis), Tremor, Loss of Coordination, Twitches
Oral Problems: Gingivitis, Sensitive Teeth, Canker Sores, Temporomandibular Joint Syndrome (TMJ), Taste
Pain: Carpal Tunnel Syndrome, Spasms, Fibromyalgia
Secondary Infections: Viral Infections, Fungal Infections
Seizures and Seizure Activity: Absence Seizures (Petit Mal), Simple Partial Seizures, "Sensory Storms," Grand Mal Seizures
Shingles
Sinusitis
Skin, Hair, and Nail Problems: Pallor; Rashes; Dry, Peeling Skin; Acne, Hypersensitivity, Spontaneous Bruising, Paresthesias, Loss of Fingerprints, Rosacea; Hair; Nails
Sleep Disorders: Insomnia or Difficulty Initiating and Maintaining Sleep, Phase Shifting, Hypersomnia, Light Sleep, Hypnagogic Sleep, Dysania, Myoclonus, Dreams and Nightmares, Night Sweats
CFS Treatment Guide Verrillo/4
Urinary Tract Problems: Cystitis, Interstitial Cystitis, Prostatitis
Vision and Eye Problems: Visual Processing Problems, Photophobia, Floaters and Spots, Tearing and Dry Eye, Sluggish Focus and Double and Blurred Vision, Tunnel Vision, Night Blindness, Depth-of-Field Loss, Nystagmus, Early Cataracts, Sjögren's Syndrome
Weather Sensitivity
Weight Loss or Gain: Weight Loss, Weight Gain
TREATMENT OPTIONS
Treatment Options, Treatment tips, Useful Resources

CHAPTER 4: PHARMACEUTICALS AND PRESCRIPTION DRUGS
Ampligen
Antibiotics
Anticonvulsants: Neurontin (gabapentin), Gabitril (tiagabine) Lyrica (pregabalin)
Antidepressant Drugs: doxepin, amitriptyline, nortriptyline, desipramine, imipramine, trimipramine, clomipramine, fluoxetine, sertraline, paroxetine, citalopram, excitalopram, bupropion, phenalzine, tranylcypromine, trazadone, venlafaxine, duloxetine, mirtazapine
Antifungal Agents: Nystatin, Diflucan, Nizoral, Sporanox
Antihistamines: Benadryl (diphenhydramine), Claritin (loratadine), Allegra (fexofenadine), Zyrtec (cetirizine), Chlor-Trimeton (chlorpheniramine maleate), Atarax and Vistaril (hydroxyzine), Dramamine (meclizine), DiVertigo
Antiviral Agents: acyclovir, famcyclovir, amantadine, valacyclovir, valganciclovir
Artesunate
Benzodiazepines: clonazepam, diazepam, alprazolam
Beta Blockers: propanolol (Inderol), atenolol (Tenormin), labetalol (Normodyne), nebivolol (Bystolic)
Calcium Channel Blockers: Nicardipine, Nimodipine, Nifedipine, Verapamil
Central Nervous System Stimulants: Ritalin, Dexedrine, Lonamin, Provigil, Strattera
Cytotec (misoprostol)
Diamox (acetazolamide)
Epogen (Procrit)
Flexeril (cyclobenzaprine)
Florinef (fludrocortisone)
Gamma Globulin
GcMAF
Guaifenesin
H2 Blockers: Tagamet (cimetidine) and Zantac (ranitidine)
Hormones: Growth Hormone, Testosterone, Thyroid Hormones
Hydrocortisone
Hypnotics: Ambien, Lunesta, Rozerem, Xyrem
Kutapressin (see: Nexavir)
CFS Treatment Guide Verrillo/5
Midodrine
Naltrexone
Nexavir (formerly Kutapressin)
Nitroglycerin
Oxytocin
Pain Relievers: Aspirin, NSAIDs, Tylenol, Aleve, Ultram, Narcotics
Pentoxifylline
Plaquenil
Pyridostigmine (Mestinon)
Questran (cholestyramine)
Rituximab
Transfer Factor

CHAPTER 5: NUTRITIONAL SUPPLEMENTS AND BOTANICALS
Introduction: Useful Resources
5-HTP
Alpha Ketoglutarate (AKG)
Alpha Lipoic Acid
Amino Acids: Carnitine, Glutamine, Lysine, Taurine
Antioxidants
Betaine HCl
Bioflavonoids: Grape seed extract, Pycnogenol, Quercetin
Butyric Acid
Choline
CoQ10 (ubiquinone, ubiquinol)
D-Ribose
Digestive Enzymes
DHEA (dehydroepiandrosterone)
Essential Fatty Acids: Fish Oil, Flaxseed Oil, Evening Primrose Oil, Borage Seed Oil
FOS (fructooligosaccharides)
GABA (gamma aminobutyric acid)
Galantamine
Glucosamine Sulfate
Glutathione
Herbs: Aloe vera, Astragalus, Chamomile, Echinacea, Garlic, Ginger, Gingko, Ginseng, Goldenseal, Gotu kola, Kava, Licorice, Lomatium, Milk Thistle, St. John's Wort, Uva ursi, Valerian
Histame
Inosine
Inositol
Malic Acid
Melatonin
Minerals: Calcium, Magnesium, Selenium, Colloidal Silver, Zinc
CFS Treatment Guide Verrillo/6
Monolaurin
Mushroom extracts: LEM (shiitake), Maitake, Cordyceps
NAC (N-acetylcysteine )
NADH (ENADA)
Piracetam
Probiotics
Royal Jelly
Sambucol
SAMe (S-Adenosyl methionine)
Vitamins: Vitamin A, Beta-Carotene, Vitamin B12, Vitamin B6, Vitamin B Complex, Vitamin C, Vitamin D, Vitamin E and Tocotrienols
Whey Products: Colostrom, Undenatured Whey, Probioplex

CHAPTER 6: ALTERNATIVE AND COMPLEMENTARY MEDICAL AND SUPPORTIVE THERAPIES
Acupressure
Acupuncture
Aroma Therapy
Bach Remedies
Bed Rest
Biofeedback
Chelation Therapy
Chiropractic
CBT (Cognitive Behavioral Therapy)
Exercise; GET (Graded Exercise Therapy)
Homeopathy
Hydrotherapy
Hypnosis
Massage: Craniosacral Massage, Lymphatic Drainage, Myofascial Release, Perrin Technique, Reflexology, Shiatsu
Meditation; Amygdala Retraining Program
Pacing
TENS (transcutaneous electrical nerve stimulation)
Visualization and Imagery
Yoga
COPING AND MANAGEMENT STRATEGIES
Introduction – Pacing Yourself

CHAPTER 7: Stress Reduction and Elimination

CHAPTER 8: Cleaning Up: Eliminating Toxins in the Home

CHAPTER 9: Food and Diet

CHAPTER 10: Special Needs of Children With CFS/ME, Adolescents, Definition of ME/CFS for Children
CFS Treatment Guide Verrillo/7

APPENDICES
A. RESOURCES
B. NATIONAL AND INTERNATIONAL ORGANIZATIONS
C. CFS/ME CLINICS, CLINICIANS, AND LABORATORIES
D. MAIL-ORDER SUPPLIERS
BIBLIOGRAPHY
 

xchocoholic

Senior Member
Messages
2,947
Location
Florida
Thanks merry. Obviously reading the book would be the only way to see what the author says about these topics. Is this really free ?

I know I'd have been completely overwhelmed and in tears if this was the official source my cfs doctor had recommended when I first got sick. But I couldn't concentrate long enough to read what I'd written months prior when this started. I just learned most of this terminology in the last 7 years.

Fwiw, is there any real direction given here or is this a collection of Me/cfs studies or theories ? Tx .. X
 

Merry

Senior Member
Messages
1,378
Location
Columbus, Ohio, USA
Thanks merry. Obviously reading the book would be the only way to see what the author says about these topics. Is this really free ?

I know I'd have been completely overwhelmed and in tears if this was the official source my cfs doctor had recommended when I first got sick. But I couldn't concentrate long enough to read what I'd written months prior when this started. I just learned most of this terminology in the last 7 years.

Fwiw, is there any real direction given here or is this a collection of Me/cfs studies or theories ? Tx .. X

Yes, the book is free, today and tomorrow. If you don't own a Kindle, first download the software at Amazon that makes your computer screen look like a Kindle. Then download the ebook.

The book is written for the patient and offers practical advice. The author offers an extensive bibliography for further reading. You don't have to read the book cover to cover. Just choose the topic that interests you. The parts I've read are very well-written.