Bob
Senior Member
- Messages
- 16,455
- Location
- England (south coast)
Forward ME group minutes from 12th Feb 2014:
http://www.forward-me.org.uk/12th February 2014.htm
These minutes are well worth a read. They include interesting and important discussions about the difficulties faced by families with children with ME in the UK (e.g. child protections issues, inappropriate treatments, problems with education, & the SMILE trial.) It seems that these issues are common, and there are many similar cases being handled by a number of the attendees at the meeting.
Among the subjects highlighted in the minutes are:
http://www.forward-me.org.uk/12th February 2014.htm
These minutes are well worth a read. They include interesting and important discussions about the difficulties faced by families with children with ME in the UK (e.g. child protections issues, inappropriate treatments, problems with education, & the SMILE trial.) It seems that these issues are common, and there are many similar cases being handled by a number of the attendees at the meeting.
Among the subjects highlighted in the minutes are:
- Various issues for families with children with ME: Inappropriate treatment, child protection issues & problems with education.
- SMILE Trial and the Lightning Process.
- UK Research Collaborative.
- Rituximab.
- UK welfare benefits: PIP and WCA.
- Dr Nigel Speight re patients in the Netherlands and Germany.
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