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Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of and finding treatments for complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia (FM), long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.
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Votes from midnight eastern time/10pm Mountain time last night - incl. increase over previous 24 hours.(Apologies for being a bit late with this update)
Votes from midnight eastern time/10pm Mountain time last night - incl. increase over previous 24 hours.
Pacific:
Whittemore Peterson Institute: 11583 + 1009 = 12592 (numbers have dipped a little - it was 1117 two days ago)
Be Perfect Foundation: 5651 + 325 = 5976
Conejo Valley Friendship Circle: 5037 + 243 = 5280
Surfers Healing 3484+264 = 3748
Canada:
Light and Love Home- Vancouver 7123+513=7636 (their numbers are going down a little)
Saint John Regional Hospital Foundation 3425+235 = 3660
6th: National ME/FM Action Network 978+105 = 1083
No spreadsheet I'm afraid but people could make up the information from the attachments I have sent (the region results are down below the top 100).Thanks again for providing these figures, Dolphin - I don't suppose you've got them on a spreadsheet that shows them as a time series that you could upload? Now that we're 14 days in I've lost any sense of the fluctuation in numbers for the individual charities. If the Pacific competitors are folding, that's very good news; and if NM/FAM are gaining, similarly but it would be good to see what the Canadian leaders' time pattern is.
No spreadsheet I'm afraid but people could make up the information from the attachments I have sent (the region results are down below the top 100).
Dolphin said:But I would repeat that I think there are not enough "floating voters" (amongst the WPI voters) to bring the National ME/FM Action Network up - they need to be trying to bring in other new voters.
Hi Sasha
I have now forwarded your text, so it will go to Bndnis ME/CFS, Fatigatio e.V. and CFS Aktuell. And i also personally asked them wheter they already promote the contest and told them i think it's a good thing and they should do so. As soon as i hear something back, i will post it here.
Next i will contact that Spanish forum you mentioned and maybe some other Spanish organisations. I will post about their reaction here too.
Eric
Votes from midnight eastern time/10pm Mountain time last night - incl. increase over previous 24 hours.Votes from midnight eastern time/10pm Mountain time last night - incl. increase over previous 24 hours.
Pacific:
Whittemore Peterson Institute: 12592 + 1013 = 13605
Be Perfect Foundation: 5976 + 255 = 6231
Conejo Valley Friendship Circle: 5280 + 241 = 5521
Surfers Healing 3748+219 = 3967
Canada:
Light and Love Home- Vancouver 7636 +543=8179 (their numbers are going down a little)
Saint John Regional Hospital Foundation 3660+289 = 3941
6th: National ME/FM Action Network 1083+146 = 1229
That is the best result for the National ME/FM Action Network that I have seen.
It is interesting that the results for some groups in Pacific e.g. Be Perfect Foundation are not as good as they were. Their spirit could have been broken. I haven't gone through all 20 to see whether there are any other groups getting a substantial number of votes.
FWIW, I added the National ME/FM Action Network to my signature.
It is slightly awkward for me to switch as I am on a forum where I have an avatar which says, "I vote for the WPI every day". They'll only put up a custom avatar like that if you donate and if you turn it off, it gets deleted.
Can you consider switch now and not waiting until 200? We'te at 176 now and we really need the votes. Thanks
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You can set up a facebook account without giving away your real identity. This fact ought to reassure those that fear consequences in real life from facebook activity. The first step is to set up a new, dedicated email address via any of the big providers. It is quick, and it is free.
There is no need to upload any information to your facebook account that you don't want to. Your avatar can be a fluffy kitten. You can knock a few years off your age, you can even change gender (all free, and without side-effects).
Thanks for trying. But it's a different forum. They have 15 (?) built in avatars. They'll upload another avatar for you if you donate. There is no button for somebody to do it themselves. So the problem isn't a technical problem.Thanks for adding it to your signature. FYI, I was able to save the image of your profile picture (right click - save picture as). If you do that and remove it from here, you should be able to reload it from the one you saved just as you do any profile picture.Dolphin said:FWIW, I added the National ME/FM Action Network to my signature.
It is slightly awkward for me to switch as I am on a forum where I have an avatar which says, "I vote for the WPI every day". They'll only put up a custom avatar like that if you donate and if you turn it off, it gets deleted.
Can you consider switch now and not waiting until 200? We'te at 176 now and we really need the votes. Thanks