I wrote this for EmpowHER for May 12
http://www.empowher.com/chronic-fat...ecfs-23-years-casting-light-invisible-illness
http://www.empowher.com/chronic-fat...ecfs-23-years-casting-light-invisible-illness
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Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of and finding treatments for complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia (FM), long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.
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Good on you, Jody and best wishes to you and your son.
My two children and I also get worse in the winter (we all have ME/CFS) - I was very interested to see you had noted that pattern too.
To May 12th and to the summer making this illness bearable. Always feel best in the summer. The sun, the possibility of swimming for my fibro, the easy dressing. Flip flops, t-shirts and shorts. Easy!
Thanks, Jody.
Thank you Jody! I tried to post a comment there, btw, but the site swears the captcha isn't right. Three times.
-J
Wow, @Jody didn't realize your son has ME also. I can PM you if you don't want to discuss it here? How long has he been ill? Must be good to have a mother with some life experience with the illness. Didn't realize you had 5 kids also! Cool, I am one of 5 also
GG
GG.
I am also one of 5 kids Jesse has been sick since he was 16, almost 9 yrs. He will be 25 yrs old this month. He is in better health this year than he's been in for many years. Better stamina, cognitive, appetitie and digestion, and sleep. I will tell him you were asking about him. He will appreciate it.
Ditto, vit D3 at relatively high dose year around seems to reduce, even prevent, the winter collapse. I have a hard time keeping my D3 up in the normal range, but I'm not up to 10,000 IUs, just 7500 IU of liquid sublingual. Easy peasy to take, no huge pile of pills.I've discovered that taking vit. D3 year round seems to make a difference, preventing the worst of the autumn and winter drop. I take 10,000 IUs a day. 8,000 IUs help, but 10,000 makes a greater difference.
Ditto, vit D3 at relatively high dose year around seems to reduce, even prevent, the winter collapse. I have a hard time keeping my D3 up in the normal range, but I'm not up to 10,000 IUs, just 7500 IU of liquid sublingual. Easy peasy to take, no huge pile of pills.
Thanks Jody,
We were found to be mildly deficient in Vitamin D even though we get plenty of sun and eat oily fish. So we have been taking a Vit D supplement along with all sorts of other things. But you are taking much more than us, so I'll look in to bumping up the dose and see if that helps. It's probably time for some more blood tests to see where we are at and I should read up on vitamin D supplementation.
We are heading in to winter here in Australia. My son started back at school this year after two years off and his attendance has slipped from 4 days a week in the term before Easter to only 2 days these last few weeks.
Happy summer to you.
Sure, please do. Take it he is not on the forum? So has he been able to get on with his life? School/career etc..?
Has what helped you, herbs and supplements. A naturopath, right? Been helpful for him also?
GG