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    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

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Flushing after eating

ahmo

Senior Member
Messages
4,805
Location
Northcoast NSW, Australia
@SDSue I started on the GAPS Intro Diet. Lot's of sulfur and histamine foods. Developed ever-worsening facial eczema, like rosacea. When I was prepping for a histamine urine test, had to stop all histamines. Face cleared 50% overnight. When I eliminated the sulfur, the rest cleared just as fast. So the pathway forward was clear. I certainly didn't understand the causes at that time, nor that this was likely (?) to be a life-time ban. don't know, some people are able to put some things back in.

I now know that I was so intolerant to so many things prior to eliminating gluten, that there was no way of knowing. Things just were the way they were: congested, itching, brain buzzing. I don't eat forbidden foods. The one thing I can say is that I'm also intolerant to iodine, Hashimoto's. But these days body wants it occasionally. If it's 2 days in a row, I start to get the typical outbreak, rash on elbows.

If bone broth is too much, make the broth w/ a piece of meat instead. Bones give off a lot of minerals. I no longer put the recommended vinegar into it, as that's just too much for me.
 

SDSue

Southeast
Messages
1,066
@ahmo - I'm loving the Neuroprotek. It's the first thing I can feel working in my brain. Naturally, I want more, more, MORE!!! But I'd like to add more of each ingredient by itself rather than all together.

To that end, may I ask what brand/dosage of rutin has been succesful for you? How about mangosteen? Are you taking them instead of or together with the Neuroprotek? Also, do I need to worry about copper?

I am tackling the dietary issues and have co-mingled my low histamine list with my low sulfur list. Since I'm already GFDF, the lists are more similar than not. But...... my coffee has to go - it's basically just a giant cup of sulfur :( It's been such a source of comfort in the morning, when I feel my worst. Any suggestions for warm, caffeinated, but sulffur free?
 

sueami

Senior Member
Messages
270
Location
Front Range Colorado
I'm off coffee too and equally as sad. For many months I was on a home roasted decaf mixed 50 pc with pure roasted chicory, which has the added benefit of being a prebiotic. But my doc wanted me off even the half decaf. If black teas don't have enough body for you, have you tried a yerba mate/chicory blend? I'm considering trying this blend, if I can find it locally, because it sounds like the right amount of body, with the roasted mate. Yerba mate has a caffeine-like effect, mood and energy lifting.
http://www.matefactor.com/loose-yerba-mate-12-oz-bags/organic-dark-roast-yerba-mate-12-oz-loose.html

Also I'm very happy to read that you are liking the Neuroprotek so well!
 

SDSue

Southeast
Messages
1,066
@sueami I have a large bag of Yerba mate in my cupboard but I've been to chicken to try it lol. Looks like it might be time! Is it known to be low sulfur?

Are you on Neuroprotek also? If it helps long term, it's a good clue to at least part of my pathogenesis. I'm keeping my fingers crossed.
 

SDSue

Southeast
Messages
1,066
Looking at sulfates in water. I drink a lot of carbonated water, because it settles my stomach. I can't find information on minerals in LaCroix, which is my favorite.

I did, however, find this chart, http://www.cleanairpurewater.com/best_bottled_water.html
which shows huge variation in mineral levels. Check out the sulfates in San Pellegrino - wonderful if your'e not sensitive. For low sulfur, Trinity Springs might be my first choice if LaCroix turns out to have too much sulfate - it's got loads of calcium and magnesium.

For other brands, check out http://www.mineral-calculator.com It list every water known to man - except LaCroix lol. Anybody know where to find info on LaCroix?
 
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ahmo

Senior Member
Messages
4,805
Location
Northcoast NSW, Australia
@SDSue, how fabulous that Nueroprotek is giving you such obvious benefits!
To that end, may I ask what brand/dosage of rutin has been succesful for you? How about mangosteen? Are you taking them instead of or together with the Neuroprotek? Also, do I need to worry about copper?
I'm using NOW rutin, Fruitrients mangosteen, Paradise royal jelly, all from iherb.

These days I'm taking 1 of each of these + Neuroprotek w/ breakfast, and usually 1 Neuroprotek w/ supper. Once in awhile I've had some histamine symptoms during the day, and take a rutin, as it's the only one I self-test + for at these times. I guess the others are providing background levels of things to quieten the mast cells.

During the last week when I was awake at 3AM w/ a chattering mind, I took a Neuroprotek and w/in 15 minutes, mind quietened. Awesome!

Re copper: Do you get some? I had high copper a year ago. Now, I self-test for a small sliver (1inch by 2 inch) about twice a week. That's my copper source,

I haven't touched coffee for nearly 2.5 years, since GAPS. And tea is fermented. I no longer do hot drinks. I used to have a cup of something hot beside me most of the time, usually milky. Now that my brain's cleared, and I've got adequate B12/folate, I no longer have any need or desire for caffeine. I drink water, and now that it's cool, I add some warm water to my filtered water. I now use a Big Berkey water filter so that I'm also getting rid of flouride. :hug:
 
Messages
79
"Mast cells react to stress. There's a direct adrenal linkage. "
@ahmo - by stress you mean psychological stress or any kind of stress?
I was about to ask if you think "dye-off" could also start this reaction of mast cells?
Or body being clogged of toxins anyway. Thank you
 

ahmo

Senior Member
Messages
4,805
Location
Northcoast NSW, Australia
@AkeBono I don't think we can separate physical and psychological or mental stress. Maybe I used to. But the adrenals are where stress hormones are made (primarily??). It registers our stress. maybe like a barometer.

My current experience is that die-off tends to clog the liver. And a clogged liver stresses the adrenals. that's how it's been for me, very clearly. So that could presumably also trigger mast cell reactions. I use coffee enemas to clear liver. I'm linking my CE experience blog, as well as Dr. Theoharides on mast cells (he's got a main website w/ many mast cell papers) and a couple adrenal links. Hope it's not TMI. Best to you:balloons:

http://www.sawilsons.com/library.htm Many sources of info re CE

http://www.mygutsy.com/the-ultimate-liver-detox-coffee-enemas/
http://www.sawilsons.com/liver.htm
A coffee enema, when done properly, causes the liver to produce more bile, opens the bile ducts and causes the bile to flow. In this process, a toxic liver can dump many of its toxins into the bile and get rid of them in just a few minutes. This often gives great relief to all parts of the body, and often makes the difference between lying down feeling miserable and feeling good and being active. Coffee Enemas are also effective in relieving pain. Patients with cancer, for example, may achieve relief from pain even when drugs failed.

http://forums.phoenixrising.me/index.php?entries/my-detox-story-coffee-enemas.1616/ My CE Blog entry


http://www.drlwilson.com/articles/adrenal_burnout.htm

http://blog.adrenalfatigue.org/ James L Wilson

http://www.tuberose.com/Adrenal_Glands.html

Mastocytosis with Theoharis C. Theoharides, MS, PhD, MD, FAA‬http://www.youtube.com/watch?feature=player_detailpage&v=CplxXGpFeKQ
http://www.youtube.com/watch?feature=player_detailpage&v=CplxXGpFeKQ
 
Messages
79
@ahmo Many thanks ahmo!
Yeah, my adrenals and liver are messed up since 4-5 years ago of EBV revival and candida overgrowth. they never regain the strenght but I did not know about them until recently. You were right about TMI :). I put one link / one day. I should try again CE and see if anything changes. In the past Ive had terible issues after doing it. The coffee was organic medium roasted so not like SA Wilson. maybe this is the key factor.
 

ahmo

Senior Member
Messages
4,805
Location
Northcoast NSW, Australia
@AkeBono
had terrible issues after doing it.
I did as well. Initially sleeplessness. Later, irritability, spaciness, brain fog. That's when I started adding things to my follow-up water enema, and taking anti-histamine supps immediately after coffee. I've written about that in my blog. If that's the nature of your issues, you might be able to proceed. carefully.;)