Greetings friends,
I've been sick for almost 3 years now with classic ME (diagnosed by Dr. Hyde). Although I had "minor" type pre-ME symptoms for a few years before my sudden onset. Anyways, I try and keep the hope alive that I (and we) can get better and even see a substantial recovery over time, but the truth is I have been in steady decline since my onset.
At the beginning I was still able to work and live a semi-normal life. Now I am almost completely housebound and require assistance with daily living. Thank god I have parents that help me out (I'm 35 years old) even though I hate being dependent on others as I'm sure we all are.
Dr. Hyde keeps telling me that people do and can get better but I am finding it hard to believe anymore since I keep slipping. And the internet is filled with people who have been sick for decades and most recovery stories are dubious at best.
This illness is so complex and disabling and I understand everyone is different, however I'm trying to keep the light alive during these dark times - just finding it more and more difficult to do so as I've lost so much because of this wretched disease (as I know all of you have as well). I'm just not sure if I should expect to never recover and continue to deteriorate and just hope for the best, or if in fact recovery or substantial improvement is actually a realistic possibility.
Thanks for your time and any thoughts/suggestions.
Cheers,
Thomas
I've been sick for almost 3 years now with classic ME (diagnosed by Dr. Hyde). Although I had "minor" type pre-ME symptoms for a few years before my sudden onset. Anyways, I try and keep the hope alive that I (and we) can get better and even see a substantial recovery over time, but the truth is I have been in steady decline since my onset.
At the beginning I was still able to work and live a semi-normal life. Now I am almost completely housebound and require assistance with daily living. Thank god I have parents that help me out (I'm 35 years old) even though I hate being dependent on others as I'm sure we all are.
Dr. Hyde keeps telling me that people do and can get better but I am finding it hard to believe anymore since I keep slipping. And the internet is filled with people who have been sick for decades and most recovery stories are dubious at best.
This illness is so complex and disabling and I understand everyone is different, however I'm trying to keep the light alive during these dark times - just finding it more and more difficult to do so as I've lost so much because of this wretched disease (as I know all of you have as well). I'm just not sure if I should expect to never recover and continue to deteriorate and just hope for the best, or if in fact recovery or substantial improvement is actually a realistic possibility.
Thanks for your time and any thoughts/suggestions.
Cheers,
Thomas