• Welcome to Phoenix Rising!

    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

    To become a member, simply click the Register button at the top right.

Fairfax media article - When No One Knows What's Wrong

Valentijn

Senior Member
Messages
15,786
A very good article, actually. Serious alternative diagnoses are listed as being found in patients after getting the CFS label and ignored. Also a specific attack on the worthlessness of psychosomatic diagnoses :D Hopefully it shocks some of the "just fatigue" people that someone who abruptly can't walk gets diagnosed with CFS, as do people with Lupus, MS, etc - it's a good indication that doctors know that we get some pretty severe symptoms.

Would have been better if they'd mention that there ARE tests for it. CPET, inflammatory markers, etc. But other than that, it was pretty perfect.