Severe ME Day of Understanding and Remembrance: Aug. 8, 2017
Determined to paper the Internet with articles about ME, Jody Smith brings some additional focus to Severe Myalgic Encephalomyelitis Day of Understanding and Remembrance on Aug. 8, 2017 ...
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Factors impacting the illness trajectory of post-infectious fatigue syndrome

Discussion in 'Latest ME/CFS Research' started by hixxy, Dec 15, 2017.

  1. hixxy

    hixxy Senior Member

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    https://www.ncbi.nlm.nih.gov/pubmed/29237442
    https://bmcpublichealth.biomedcentral.com/articles/10.1186/s12889-017-4968-2
     
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  2. hamsterman

    hamsterman Senior Member

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    Los Angeles
  3. Tom Kindlon

    Tom Kindlon Senior Member

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    Note that they sometimes you the term "economic" in a way that is a bit confusing:
    e.g. "This coupled with a strained economic situation". They are referring to the individual financial situation of the patient rather than how the country's economy is doing. The corresponding author's first language is probably not English.
     
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  4. Tom Kindlon

    Tom Kindlon Senior Member

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    Stormorken 2017.png
     
  5. Tom Kindlon

    Tom Kindlon Senior Member

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    How to interview people with ME/CFS:

     
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  6. Tom Kindlon

    Tom Kindlon Senior Member

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    Last edited: Jan 29, 2018
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  7. Tom Kindlon

    Tom Kindlon Senior Member

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  8. Tom Kindlon

    Tom Kindlon Senior Member

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  9. Tom Kindlon

    Tom Kindlon Senior Member

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  10. Tom Kindlon

    Tom Kindlon Senior Member

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  11. Tom Kindlon

    Tom Kindlon Senior Member

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  12. Tom Kindlon

    Tom Kindlon Senior Member

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  13. Tom Kindlon

    Tom Kindlon Senior Member

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    Stormorken quote 2.PNG
     
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  14. Tom Kindlon

    Tom Kindlon Senior Member

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  15. Tom Kindlon

    Tom Kindlon Senior Member

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    Stormorken quote 3.PNG
     
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  16. Tom Kindlon

    Tom Kindlon Senior Member

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  17. Tom Kindlon

    Tom Kindlon Senior Member

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    Stormorken quote 4.PNG
     
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  18. Tom Kindlon

    Tom Kindlon Senior Member

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  19. Tom Kindlon

    Tom Kindlon Senior Member

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    Those who promote CBT and GET can give the impression that people can get stuck at low levels of activity unnecessarily but this does not seem like the experience for this cohort:
     
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  20. Tom Kindlon

    Tom Kindlon Senior Member

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    I'm quoting an awful lot of this, perhaps too much, I just think it's a useful paper highlighting what patients and patient organisations say and have experienced.
     
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