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For those on Facebook, there is a group dedicated to fighting the IOM contract to redefine M.E. It's called "U.S. Campaign for Myalgic Encephalomyelitis (M.E.)". Please read the group description to get a sense of what we are about. If you agree with its goals, please ask to be added.
The URL is here: https://www.facebook.com/groups/624505110934978/
The URL is here: https://www.facebook.com/groups/624505110934978/