European ME Alliance Meets in European Parliament

[Jo Best]

Recordings of the presentations at the Care4ME Conference are now on youtube in nine (I think) videos.

Part One (no English subtitles) features Dr. Greta Moorkens talking about the different causes of fatigue and the different diagnostic criteria, then scientific research in oncology, psychiatry and endocrinology in chronic fatigue syndrome.

 

[Jo Best]

Part Two. Mr. Koen Deraedt explained the policy on ME/CFS in Belgium and showed an initial evaluation of the rehabilitation agreement which UZ Leuven started using. (no English subtitles).

 

[Jo Best]

Part Three. Dr. Anne-Marie Uyttersprot shared her experiences as a neurologist and experience expert. A unique look at ME by a doctor who experiences the condition of both sides. (no English subtitles)

 

[Jo Best]

Part Four. Cardiologist Dr. Visser gives more explanation about Orthostatic Intolerance in ME/CFS.

 

[Jo Best]

Part Five. Paediatrician Dr. Nigel Speight on his experience of children with ME and how they and their parents are treated by the system.

 

[Jo Best]

Part Six. Dr. Jo Cambridge talked about her work around B cells and Rituximab and her interest in ME/CFS.

 

[Jo Best]

Part Seven. Dr. Olli Polo shared his knowledge about non-restorative sleep and dysautonomy in ME/CFS.

 

[Jo Best]

Part Eight. Professor Simon Carding talked about his research on the role of the gut in ME/CFS in the context of the translational biomedical research programme of the Invest in ME Research Centre of Excellence for ME, and about the European initiatives for research into ME, Euromene and EMERG (European ME Research Group).

 

[Jo Best]

Dr. Louise Brinth (MD from Denmark) spoke about 'quality of life' in ME/CFS; a study with colleague Hvidberg.

 

[Jo Best]

A reminder that a written report on the meeting, including summaries of the talks, is in the Journal of Invest in ME Research, June 2017 conference edition, under the title 'EMEA News':
http://www.investinme.org/journals.shtml
pdf:
http://www.investinme.org/Documents/Journals/Journal of IiMER Vol 11 Issue 1.pdf