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EUROMENE - New European research network for ME/CFS funded by COST/EU

Sasha

Fine, thank you
Messages
17,863
Location
UK
I'm doing some Biobank work this afternoon and will be in contact with Eliana - so I'll let her know that this discussion is taking place and will ask her if there is anything further that could be placed in the public domain at this point

Thank you! :thumbsup:

As I understand it, what's funded is meetings (maybe releasing money currently raised by local charities), swapping staff and people sitting together coming to an agreement on frameworks to put individual studies in. The project might take on a research assistant to co-ordinate. The money is there. I think it is about 150,000. Probably the first thing to happen is that an extra day will be added to the IiME meeting in June for an EMERG gathering.

Thanks - good to know. An extra day on that conference sounds very good.

What patients can do to help is drum up donations for local charities to fund the individual projects - as is already being done but this may give people confidence that they are contributing to something co-ordinated and big.

By local, do you mean national?

IiME have individual pots for certain of their research projects (the rtx and the gut ones) that people can donate to but I don't think that the other charities do. I wonder if that's something they should consider moving towards. And it would be good for potential donors to know which projects come under this COST umbrella (do the IiME ones?).

Jonathan Edwards said:
Apart from me you have two direct ways in to the programme - via MEA and Charles's webpage and via IiME and its website.

Also useful to know - thank you!

Jonathan Edwards said:
I think the dust needs to settle a bit but maybe in the New Year Dr Lacerda might be able to put something on IiME's or Charles's site to clarify. There is already an EMERG page.

Great - it would be wonderful to have a reasonably regular and frequent bulletin of progress. It's so incredibly frustrating to sit in the metaphorical dark.

Where is the EMERG page? I googled but couldn't find it.
 

MEMum

Senior Member
Messages
440
Working on Saturday - I'm impressed! :)

I am very impressed at the tremendous amount of work/hours that Dr Shepherd and Professor Edwards give to liaising with us through this site and the huge amount they do for research/understanding the ilness/the WAR on PACE etc.
Thank you so much for the hope you are bringing to people with ME, their friends and families.
 

Marco

Grrrrrrr!
Messages
2,386
Location
Near Cognac, France
Also an approval of COST and therefore the EU gives the ME community a lot of seriousness. Not only for future research funding, but also for advocacy and charity work. We can always refer to the COST program, if people try to dismiss our claims about the reality of ME.

I would imagine that working on a COST affiliated project would also look pretty good on a young researcher's CV
 

jimells

Senior Member
Messages
2,009
Location
northern Maine
I am very impressed at the tremendous amount of work/hours that Dr Shepherd and Professor Edwards give to liaising with us through this site and the huge amount they do for research/understanding the ilness/the WAR on PACE etc.
Thank you so much for the hope you are bringing to people with ME, their friends and families.

I get worn out just reading about all the work they do on our behalf. I'd like to nominate both of them for a "Golden Couch" award and induction to the "M.E. Hall of Fame".
 

Tuha

Senior Member
Messages
638
I ve just realisied, that the proposal has 23 countries listed as proposers:
Network of Proposers (23): AT, BE, BG, CY, CZ, DE, DK, EE, ES, FI, FR, HU, IE, IL, IT, LU, NL, PL,RS, SE, SI, TR, UK (ITC: 43%)

omg!

Can we find somehow the researchers from each country who are involved in this project? I would be especially interested who is involved there from Czech republic or Austria.
 

Dolphin

Senior Member
Messages
17,567
Just looking at an old discussion on another forum in Feb 2008 and Dr Derek Pheby was involved with the EUROMENE group. Don't know why he isn't mentioned now - perhaps he is retired?
---
Some more information I had on file:
From the May 2014 newsletter of the Shropshire ME Group. Prof. Derek Pheby presented at their conference in April

Slide 34: Euromene (European ME Network)

- 30+ participating centres in 15 countries

- (Have) just submitted proposal to the EU for €6 m to support collaborative research as part of Horizon 2020 programme

- Title: “Understanding ME/CFS: elucidating determinants, risk factors and pathways in order to develop personalised preventive diagnostic and therapeutic strategies.”

Slide 35: Euromene (2)
– Aim of Proposed Project Increasing understanding of ME/CFS by:

- mapping knowledge in a systems medicine model, enriched with nanoanalytical, new-generation sequencing, proteome analysis data and PET studies

- developing an integrated, translational platform, incorporating new and existing knowledge and well characterised patient cohorts in seven European countries.

- leading to new diagnostic and therapeutic products and optimal prevention and treatment strategies.

The second point has to do with getting the new information out to helping patients as quickly as possible. The third point refers also to adding to what is known about the pathology of ME and therefore making diagnosis and treatment more effective.

We already know that more cases of ME are reported in Northern Europe than in the South but this could be the result of more difficult access to medical services.
 

Dolphin

Senior Member
Messages
17,567
Another file I have on file, which is also online: http://www.salutemed.it/cfs/RelazioniConvegnoPavia2008.pdf

i.e. from 2008

La Sindrome di affaticamento cronico in Spagna
Antoni Fernandes Sola, CFS Cima Unit, Fundacio per laFibromialgia y la Fatica cronica, Barcelona, Spain

[..]

Sono molteplici i campi di indagini che devono essere intrapresi, fra cui: quello genetico, di tipo diagnostico, le infezioni virali e il trattamento. Il problema principale in Spagna è quello dei finanziamenti per la ricerca per questa malattia. Credo che sia un problema comune con gli altri paesi Europei. E’ importante quindi lavorare insieme e creare una rete che possa permettere di affrontare i vari aspetti della CFS.

La cooperazione europea è la soluzione ottimale per affrontare gli aspetti clinici, scientifici e legali della CFS ed il progetto EUROMENE potrebbe essere molto utile a questo riguardo.

Bing Translation

There are many fields of investigation to be undertaken, including: that genetic,diagnostic, viral infections and treatment.The main problem in Spain is that o fresearch funding for this disease.I think it'sa common problemwith other European countries.It is therefore important work together and create a network that can afford to address the various aspects of CFS.

European cooperation is the optimal solution for clinical, scientific and legal aspects of CFS and the EUROMENE project could be very useful in this regard.
 
Last edited:

Dolphin

Senior Member
Messages
17,567
Found this info online (from 2009)

http://elpuzzledelafm.blogspot.de/2009/11/coordinador-de-euromene-para-espana-dr.html

ORIGEN: http://corredorsolidari-toni.blogspot.com/

DOMINGO 8 DE NOVIEMBRE DE 2009

Del blog del Doctor Antoni Fernandez Solà

EUROMENE

EUROMENE son las siglas de EUROpean Myalgic Encephalomyelitis NEtwork.

Es una red europea de investigació sobre el síndrome de fatiga crónica ( o encefalomielitis mialgica, como también se conoce la enfermedad en algunos paises).

Su objetivo es potenciar la investigación sobre la fatiga crónica en el ámbito europeo.

Desde este mes, tengo el honor de ser coordinador de EUROMENE para España.

Intentaré que mi trabajo sea certero y contribuya a mejorar el nivel de nuestra investigación en esta patologia.
Espero y deseo poder contar con la colaboración de todos.
Seguimos avanzando.

Publicat per Mireia Arbós FibroFatigada a diumenge, de novembre 29, 2009

Bing translation:

SUNDAY, NOVEMBER8, 2009

DoctorAntoni Fernandez Solà blog

EUROMENE

EUROMENEstandsforEUROpeanMyalgicEncephalomyelitisNEtwork.

It is a European network of research on syndrome of chronic fatigue (or myalgic encephalomyelitis), also
known as the disease in some countries.

Its aim is to promote research on chronic fatigue at European level.

From this month, I have the honour of being the Coordinator of EUROMENE to Spain.

I will try that my work is accurate and will help to improve the level of our research in this disease.

I hope and wish to have the cooperation of all.
We aremoving ahead.

Post by Mireia Arbós Fibro Fatigadato Sunday, November 29, 2009
 

Dolphin

Senior Member
Messages
17,567
Another earlier file:

https://www.lshtm.ac.uk/itd/crd/res..._final_report_executive_summary_2011_2014.pdf

The UK ME/CFS Biobank
Final Report – Executive Summary
For work carried out 8 August 2011 – 30 June 2014
November 2014

[..]

We also strengthened partnerships with hospitals and physicians in central and the Greater London area, including the Royal Free Hospital in London, which has been a recruitment site for the project through its Clinical Immunology Department.

This project also facilitated the development of an international consortium of ME/CFS researchers, many of whom are supportive of the creation of a pan-European network of ME/CFS biobanks with harmonized protocols for clinical assessments, sample, and data collection, research questionnaires, and laboratory processing procedures. This network will optimise sample sharing between biobanks for future research studies at our respective institutions and also allow outside researchers access to larger sample sizes and the comparison of cohorts from different geographic regions.

Related to this, the EUROpean M.E. NEtwork (EUROMENE) has been strengthened and collaborative applications are underway. Partners include researchers from a range of disciplines located across Europe and collaborations in the U.S. and the Southern Hemisphere are also being developed.

We will continue to nurture collaborations with colleagues both in the UK and abroad to identify synergies and further develop the Biobank network, thereby expanding our collective resource.
 

Dolphin

Senior Member
Messages
17,567
Another file I have on file, which is also online: http://www.salutemed.it/cfs/RelazioniConvegnoPavia2008.pdf

La Sindrome di affaticamento cronico in Spagna
Antoni Fernandes Sola, CFS Cima Unit, Fundacio per laFibromialgia y la Fatica cronica, Barcelona, Spain

[..]

Sono molteplici i campi di indagini che devono essere intrapresi, fra cui: quello genetico, di tipo diagnostico, le infezioni virali e il trattamento. Il problema principale in Spagna è quello dei finanziamenti per la ricerca per questa malattia. Credo che sia un problema comune con gli altri paesi Europei. E’ importante quindi lavorare insieme e creare una rete che possa permettere di affrontare i vari aspetti della CFS.

La cooperazione europea è la soluzione ottimale per affrontare gli aspetti clinici, scientifici e legali della CFS ed il progetto EUROMENE potrebbe essere molto utile a questo riguardo.

Bing Translation

There are many fields of investigation to be undertaken, including: that genetic,diagnostic, viral infections and treatment.The main problem in Spain is that o fresearch funding for this disease.I think it'sa common problemwith other European countries.It is therefore important work together and create a network that can afford to address the various aspects of CFS.

European cooperation is the optimal solution for clinical, scientific and legal aspects of CFS and the EUROMENE project could be very useful in this regard.

More info on this conference (see afternoon session)

http://www.meassociation.org.uk/200...ional-mecfs-conference-in-italy-september-26/

Summary of proceedings: international ME/CFS conference in Italy, September 26
This is a brief summary on a very successful international ME/CFS conference that was held in Pavia, Italy on Friday 26 September 2008.


The University town of Pavia is graced by fine Romanesque and medieval buildings. It lies about 25 miles south of Milan.
The conference was organised by a group of Italian physicians, including immunologist Dr Lorenzo Lorusso (Pavia) and cancer specialist Dr Umberto Tirelli (Aviano). It was open to both health professionals and patients. Financial and administrative support was provided by Italian patient support charities, the Istituto Neurologico in Pavia, the University of Chieti and the University of Pavia.

There was a packed lecture theatre with a webcam transmission to an overflow audience in another room. The strong attendance reflects the growing recognition and interest in ME/CFS in Italy, and it was encouraging to see so many health professionals from all disciplines who were clearly interested in learning more about ME/CFS from both the doctor and patient perspectives.

Those attending were provided with free copies of ‘ME/CFS/PVFS – An Exploration of the Key Clinical Issues’ – the MEA purple booklet for health professionals

Morning session

The morning session consisted of 12 presentations covering diagnostic, management and research aspects. There were also some excellent presentations from patient group representatives. As the morning presentations were all given in Italian, with Italian abstracts, I will not attempt to summarise their content here.

Afternoon session

The afternoon session, which was chaired by Dr Derek Pheby (UK) and Dr Umberto Tirelli, consisted of presentations from doctors outside Italy who belong to the EUROMENE network. This session, including much of the Panel discussion, was conducted in English.

Dr Derek Pheby (ME Observatory, UK)
spoke about what we know, what we don’t know, and what needs to be done when it comes to the epidemiology of ME/CFS (ie details on how many people have ME/CFS, along with their age, sex etc).

Dr Greta Moorkens (Antwerp, Belgium)
spoke about the situation in Belgium and went on to describe some of the research that her group have carried out into the role of magnesium in ME/CFS.

Dr Charles Shepherd (MEA, UK)
spoke about the situation in the UK – CMO report, MRC strategy, NICE guideline etc – and summarised some of the patient concerns regarding nomenclature (ie why the term CFS is so disliked by many patients), frustrations over the lack of biomedical research, and the fact that results from clinical trials into CBT and GET are not consistent with patient evidence on these controversial forms of treatment.

Dr Eliana Lacerda (London, UK)
spoke about the work of the European Network on ME/CFS.

Dr Luis Nacul (London, UK)
spoke about recognition and services for people with ME/CFS in South America.

Dr Modra Murovska (Riga, Latvia)
spoke about her research into the role of HHV-6 and HHV-7 (human herpes virus infections) in ME/CFS.

Dr Antoni Fernandez (Barcelona, Spain)
spoke on the situation in Spain.

Dr Ruud Vermeulen (Amsterdam, Netherlands),
who had been to the recent international fatigue conference in Japan, summarised some of the most recent international research findings, particularly the Gow, Kerr and Vernon studies into gene expression, and how these might lead to new forms of treatment for ME/CFS.

Panel Discussion

The meeting closed with questions to the Panel. Among topics discussed were the role of vaccinations as trigger factors, genetic factors in ME/CFS, history of the illness, and how patient support charities have worked together with doctors in the UK to move the biomedical research agenda forward.

Overall, this was a productive and stimulating meeting that succeeded in keeping the interest of an audience made up of both doctors (about 70%) and patients (about 30%) – yes it can be done! The decision to spend much of the afternoon session discussing the situation for people with ME/CFS in other parts of Europe was a new departure and we are now looking at how a meeting in London next year could help to continue the European co-operation of doctors who are aligned to the biomedical model of illness.

The conference programme can be accessed via this page on the MEA website.
Report prepared by Dr Charles Shepherd
 

Dolphin

Senior Member
Messages
17,567
Getting very old now. Here's a document from 2001 talking about the EuroMENE

http://www.salutemed.it/cfs/n01.htm

Proposta per la valutazione delle differenze nella prevalenza della Sindrome da Stanchezza Cronica/Encefalomielite Mialgica (CFS/ME) tra i paesi dell'Unione Europea, dell'impatto sui sistemi sanitari e proposta per la realizzazione di una rete di ricerca multinazionale.

Acronimo della proposta: EUROMENE (European CFS/ME Network)

Data: 13 ottobre 2001

CARATTERISTICHE DEL PROGRAMMA

Il progetto di collaborazione e di studio tra le varie nazioni é denominato EUROMENE (European CFS/ME Network) ed ha lo scopo primario di instaurare una collaborazione tra i vari stati europei per la raccolta ed il confronto di dati scientifici atti a definire la prevalenza della (CFS/ME) nelle diverse aree europee, ed identificarne le possibili cause. Questi dati saranno presentati alle autorità governative e sanitarie e alle associazioni di volontariato allo scopo di sviluppare servizi e di creare le basi per una futura realizzazione di nuove metodologie diagnostiche e terapeutiche in ambito assistenziale.

OBIETTIVI

Gli obiettivi principali di EUROMENE sono i seguenti: A) Stabilire una rete informatica per la raccolta dei dati epidemiologici al fine di definire l'incidenza e la prevalenza della CFS/ME nell'Unione Europea e concentrare gli sforzi delle varie nazioni in ricerche e sviluppi futuri. B) Stabilire una metodologia comune per tutti i paesi membri che partecipano allo studio, per il riconoscimento e la diagnosi della CFS/ME. C) Definire le procedure di accesso alle strutture sanitarie private e pubbliche e alle associazioni di volontariato degli individui affetti da Sindrome da Stanchezza Cronica (CFS/ME). D) Creare un database nazionale per la raccolta di dati epidemiologici sulla CFS/ME a livello europeo, sul quale basare le fondamenta scientifiche e cliniche della ricerca. E) Ottenere e trattare tutti i campioni biolgici per facilitare le ricerche cliniche di base come ad esempio lo studio di markers diagnostici di CFS/ME ed approfondire le ricerche epidemiologiche come l'esposizione a fattori di rischio potenziali attraverso studi di caso controllo. F) Definire adeguate procedure per il reperimento dei casi e per la raccolta ed inserimento di dati e campioni relativi alla ricerca. G) Unificare i paesi europei tramite informazioni sulla CFS/ME.

STRUMENTI DELLA RICERCA

Per raggiungere gli obiettivi del progetto sono stati proposti precisi provvedimenti che permetteranno a tutti i centri partecipanti di ottenere dati epidemiologici e campioni biologici nel rispetto degli obiettivi comuni. I partecipanti specializzati nella ricerca clinica e di laboratorio definiranno e coordineranno gli studi epidemiologici a livello centrale permettendo il raggiungimento degli obiettivi comuni assicurando la validità dei risultati che saranno alla base di futuri trials terapeutici multinazionali.

VALORE EUROPEO DEL PROGETTO

Le informazioni epidemiologiche e tutti i dati relativi alla incidenza della CFS/ME in Europa permetteranno lo sviluppo di nuove regolamentazioni sanitarie e l'impiego di strategie ottimali per la gestione della malattia e dei pazienti. Attualmente, la scarsità di sperimentazioni multiple non permettono di accertare le terapie disponibili che potrebbero di fatto migliorare lo stato del paziente, inoltre, l'eterogeneità della CFS/ME rende indispensabile questa rete di ricerca europea per fornire un numero sostanziale di pazienti, sufficiente a supportare i trials che altrimenti non potrebbero essere sviluppati singolarmente dai diversi stati. Infine, la collaborazione con biologi ed epidemiologi molecolari permetterà lo sviluppo di metodi integrati per la valutazione di strategie diagnostiche di laboratorio al fine di ottimizzare anche le ricerche relative all'epidemiologia molecolare. Attualmente non ci sono terapie specifiche e test diagnostici per la CFS/ME, ma e' di fondamentale importanza sensibilizzare l'opinione pubblica su questa patologia e fornire materiale scientifico ai medici che ignorano l'esistenza di una malattia cosi' complessa. Infatti dal coinvolgimento dei pazienti, delle loro famiglie, dei gruppi di supporto dei pazienti, del personale sanitario, ed infine dalle agenzie governative nazionali e locali dipenderà il successo del progetto. La ricerca sarà diretta in base alla legislazione nazionale di ciascun stato previa approvazione ed autorizzazione da parte dei comitati etici di ciascuna nazione.

Google Translate:

Dear Members,

we are pleased to inform you that the European Commission is considering making a European study on Chronic Fatigue Syndrome in order to compare the prevalence of CFS / ME in Europe. Will participate in this study among others Prof. De Meirleir - Koeple Klinische (Belgium), Prof. Umberto Tirelli - National Cancer Institute (Aviano), Prof. Guido Valesini - (University of Rome "La Sapienza", Prof. Cathebras Pascal - Hospital North (France), Prof. Winfried Rief - Phillpps Universitaet (Germany), Professor Leslie Findley ME National Center (England), Dr. Bleijenberg - University of Nijmegen (Netherlands), Dr. John Davies - Queen Mary and Westfield College, Prof. Ivo Hana - Institute for Clinical and Experimental Medicine (Czech Rep.). The CFS / ME is a syndrome from unknown cause that affects the physical and mental ability of individuals who are affected, impairing their ability to work and Social. Based on some studies English and Dutch, it may be stated that in Europe there are from one to four million people with CFS / ME. This is of fundamental importance both to health and social because it is a disease chronic lasting for several years and which often affects young people.Currently, the countries participating in this study represent a valuable tool for the collection of epidemiological data on the disease. In fact, in Europe it 's never been prepared a study of this type for this condition, unlike the United States where instead for some years have been compiled epidemiological studies that allowed for extensive research and an effective health program. This research will have as its main objective to support specific investigations and exploratory epidemiological research in order to recognize and provide assistance to people with CFS / ME, defining possible strategies for effective management of the disease in Europe. In early January, an article appeared on a major British magazine whereby the authoritative scientific committee of the British government led by Sir. Liam Donaldson, said that CFS and 'chronic disease in all respects, even though patients are often overlooked and labeled as hypochondriacs, and had stressed the need to increase research into the causes and treatments. European associations have appreciated the involvement of the British government on this issue and rely on financial support for research. We report on the following pages some of the descriptions of the project should begin in the coming months and on which we reserve the right to announce the results soon.

CFS ASSOCIATION ITALIAN


TITLE
Proposal for the evaluation of the differences in the prevalence of chronic fatigue syndrome / myalgic encephalomyelitis (CFS / ME) between the European Union countries, the impact on health systems and proposal for the creation of a network of multinational research.

Proposal Acronym: EUROMENE (European CFS / ME Network)

Date: 13 October 2001

FEATURES OF THE PROGRAM

The collaborative project and study the various nations is called EUROMENE (European CFS / ME Network) and has the primary purpose of Cooperation between the various European states for the collection and comparison of scientific data that define the prevalence of (CFS / ME) in different parts of Europe, and identify possible causes. These data will be presented to government authorities and health and voluntary organizations in order to develop services and to create the basis for future development of new diagnostic and therapeutic methods in the field of welfare.

AIMS

The main objectives of EUROMENE are as follows: A) Establish an information network for the collection of epidemiological data in order to determine the incidence and prevalence of CFS / ME in the European Union and focus efforts of various nations in research and development future. B) Establish a common methodology for all member countries participating in the study, for the recognition and diagnosis of CFS / ME. C) Define the procedures for access to private health care and public and voluntary associations of individuals with Chronic Fatigue Syndrome (CFS / ME). D) Create a national database for the collection of epidemiological data on CFS / ME at European level, on which to base the foundations of scientific and clinical research. E) Obtain and treat all samples biolgici to facilitate clinical research base such as the study of diagnostic markers for CFS / ME and further epidemiological studies that exposure to potential risk factors through case studies control. F) Defining appropriate procedures for the retrieval of cases and for the collection and input of data and samples relating to the search. G) Unify European countries through information on CFS / ME.

RESEARCH TOOLS

To achieve the objectives of the project were proposed specific measures that will allow all participating centers to obtain epidemiological data and biological samples in accordance with the common objectives. Participants specialized in clinical research and laboratory will define and coordinate epidemiological studies centrally allowing the achievement of the common objectives by ensuring the validity of the results that will be the basis of future therapeutic trials multinationals.

EUROPEAN VALUE PROJECT

Epidemiological information and all data on the incidence of CFS / ME in Europe will allow the development of new health regulations and the use of optimal strategies for disease management and patient. Currently, the scarcity of multiple experiments do not allow to ascertain the available therapies that may in fact improve the state of the patient, in addition, the heterogeneity of CFS / ME makes it essential to this European research network to provide a substantial number of patients, sufficient to supporting trials that could not otherwise be developed individually by different states. Finally, collaboration with molecular biologists and epidemiologists will allow the development of integrated methods for the evaluation of laboratory diagnostic strategies in order to optimize even the research on molecular epidemiology. Currently there are no specific treatments and diagnostic tests for CFS / ME, but it 's very important to raise public awareness of the disease and provide scientific material to doctors who ignore the existence of a disease so' complex. Indeed the involvement of patients, their families, support groups of patients, healthcare personnel, and finally by the national and local government agencies will depend on the success of the project. The research will be conducted in accordance with national law of each state prior approval and authorization by the ethics committees of each nation.
 

Dolphin

Senior Member
Messages
17,567
Brief mention of EuroMENE from 2014:

http://www.vhir.org/portal1/news-de...f the present and the future of the Institute

Dr. Alegre’s group has also collaborative research projects with the European-Wide EUROMENE network for CFS, the FINTA European Consortium – Fibromyalgia, the FF Foundation, the Center for Genomic Regulation, the Universitat Rovira i Virgili, the Universidad de Sevilla, and the Irsi-Caixa Institute. Furthermore, in the last Biennial International Conference IACFS/ME, hosted on March in San Francisco (USA), Dr. Alegre was appointed lifelong member of the American Association in CFS.
 

Dolphin

Senior Member
Messages
17,567
http://www.rsu.lv/eng/science-and-research/scientific-priorities/priority-iv

Modern approaches to infection agents, their role in infections relevant for Latvia

Unique research excellence on immunomodulating viruses has been developed on the basis of A. Kirchenstein Microbiology and Virology Institute (MVI).

Close collaboration with Department of Infectology and Department of Neurology (tick-borne encephalitis). New research on Chronic Fatigue Syndrome, participation in the European Observatory (EUROMENE). Prospective research on immunomodulating therapies used for treatment of malaria, TBC and HIV.
 

Dolphin

Senior Member
Messages
17,567
More old info:
https://meagenda.wordpress.com/2008...ation-board-of-trustees-meeting-24-june-2008/
Summary ME Association Board of Trustees meeting, 24 June 2008

[..]



EUROMENE (European ME Network)


Charles Shepherd reported on a meeting of this group of doctors from the UK and various overseas countries that was held in London on 21 May. The EUROMENE group has been set up to promote greater co-operation between doctors in different countries, mainly within Europe, who are involved with either clinical or research aspects of ME/CFS. One result of this meeting is that Dr Shepherd has been invited to Milan in September to speak at a conference for Italian doctors on the situation here in the UK.
 

Jonathan Edwards

"Gibberish"
Messages
5,256
Can we find somehow the researchers from each country who are involved in this project? I would be especially interested who is involved there from Czech republic or Austria.

I have spoken to Dr Lacerda by email. Derek Phebe is still involved. I think the precise list of names actively involved is going to be fairly fluid, although there are some designated names needed for the formal grant structure. Hopefully Dr Lacerda will provide us with a bit more detail once the remaining bureaucratic procedures have been got out of the way.