Phoenix Rising tells QMUL: release the PACE trial data
Mark Berry, Acting CEO of Phoenix Rising, presents the Board of Directors’ open letter to Queen Mary University of London (QMUL) urging them to release the PACE trial data, and hopes that other non-UK organisations will join British charities in the same request...
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Esther Crawley's BristolTEDx talk video (Nov. 2, 2017)

Discussion in 'General ME/CFS News' started by Nielk, Nov 2, 2017.

  1. Nielk

    Nielk

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    Here is video of today's TEDx talks. Crawley appears at about the midpoint mark of the video.

    https://tedxbristol.com/
     
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  2. Nielk

    Nielk

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    See Dr. Keith Geraghty tweets about this talk.

     
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  3. Nielk

    Nielk

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    MEMum, ladycatlover and Joh like this.
  4. Nielk

    Nielk

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  5. ChrisD

    ChrisD Senior Member

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    EC doesn't seem to be in the video when I am watching it o_O Perhaps they have a morning and afternoon session and have overwritten the previous video link/?
     
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  6. Demepivo

    Demepivo Dolores Abernathy

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    It's apparently 1 hour 30 minutes in
     
  7. ChrisD

    ChrisD Senior Member

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    Definitely not from the above link, it's a live stream so an ever changing timeline. This must be the afternoon session embedded in their homepage and the other sessions will be released in due course. Not too concerned about missing it!
     
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  8. Nielk

    Nielk

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    I don't see it now as well. I did see it earlier. It seems like Crawley was on at 12:40 (before lunchbreak) and the current video is showing the afternoon speakers. Not sure why they are not keeping the earlier video up.

    https://tedxbristol.com/schedule
     
  9. Yogi

    Yogi Senior Member

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    If someone could YouTube this talk on their own channel this would be great.

    1 It would stop Katie Hopkins aka Esther Crawley getting hits on their TED YouTube website and the advertising revenue. We are being used as clickbait by TED/Crawley and by watching their YouTube we are #fundinghate and indirectly supporting Crawley.

    2 It would be good to preserve on record for mepedia and use against her for potential GMC/court cases if TED removed.

    We need to keep record of all her evidence.

    Just tagging @JohntheJack @garcia but requesting anyone in the community.
     
    Last edited: Nov 2, 2017
    JaimeS, Orla, JohntheJack and 2 others like this.
  10. Marky90

    Marky90 Science breeds knowledge, opinion breeds ignorance

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    Someone has a god complex

    Terrible talk,
    But not for the layman
     
  11. Deepwater

    Deepwater Senior Member

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    It was in the afternoon session.
     
  12. keenly

    keenly Senior Member

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    Why give this cretin any attention?
     
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  13. Forbin

    Forbin Senior Member

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    I get a notice saying that the video is "blocked in your country," (i.e. the USA for me).
    Where do I send a "Thank You" note to [Merlin] Redeye Distribution for blocking this?
     
    Last edited: Nov 3, 2017
    Daisymay likes this.
  14. SB_1108

    SB_1108 Senior Member

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    I think we should just ignore this. Maybe someone who has already watched it could give a summary but let’s not add to the view count.
     
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  15. Forbin

    Forbin Senior Member

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    True, but the video that was up there was of the entire day's presentations, so it would have been impossible to attribute the view count to any one presentation. It's a moot point now, as the video has vanished from the page altogether.
     
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  16. boombachi

    boombachi Senior Member

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    I am not on twitter but I am able to read messages on twitter.com. i have just read as many tweets as i could sent to tedxbristol and #daretodisrupt. I want to say thank you to everyone who tweeted their very carefully worded responses to ECs talk.

    No harrassment. No abuse. Just well thought out polite statements. I am so very impressed. I wish I could express myself so eloquently. THANK YOU THANK YOU THANK YOU.
     
  17. Dolphin

    Dolphin Senior Member

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  18. Cinders66

    Cinders66 Senior Member

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    Cringeworthily whiney

    Esther seems on a one woman crusade to tell the world what an awful field this is as part of her self protection.

    The use of the child's picture and then claiming for shock value that actually she couldn't use the actual child's photo half way because the child would get attacked (by us) was a low blow and she totally misrepresents her critics as anti research. Claiming research isn't being done or is delayed is because people are so busy fighting off attackers - total rubbish.

    To be the most generous she's extremely self righteous but I feel she's manipulative too. I don't recall her demanding biomedical research funding over the years really, just rolling out behavioural approaches (yes I know about mega).
    Maybe she is just seeing things very differently to us but I can not agree with her and she needs to stop hiding beyond her "children at my clinic " and realise the effect of her actions on the wider community. There is valid criticism of the work she does.
     

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