heapsreal
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- Messages
- 10,104
- Location
- australia (brisbane)
Just read all of your posts... I too am suffering with this viral HELL...and a bunch of other crap too... Been ill since I was 12... I have sky high titres for HHV6, EBV, HSv1 and 2 in addition to all other kinds of crap - thyroid - biotoxin illness.. and Chronic Lyme. I am seeing Dr. Kogelnik in California and am currently on the Rituxan - Having 3rd infusion on the 9th of Oct. Then will have 3 more after that over next 10 mo... Dr. K's theory is the viral infections hide in the B cells... Rituxan is a chemotherapy drug that wipes out B cells... Definately a drastic move on my part...but I am in drastic mode right now...as I am completely disabled...only able to just LIVE and somedays I don't do too good at even that... Will keep yall posted on the Rituxan...and am hoping nothing but the best for ALL of us WARRIORS who DESERVE to be WELL!!! Fight on!!
Is dr K considering antivirals for you while on ritux? I ask this as i heard him mention this as a theory.
cheers!!!