Professor & patients' paper on the solvable biological challenge of ME/CFS: reader-friendly version
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EPD or LDA (enzyme potentiation desensitization or low dose allergens) for MCS

Discussion in 'Antivirals, Antibiotics and Immune Modulators' started by JanisB, Sep 9, 2011.

  1. JanisB

    JanisB Senior Member

    Central Ohio
    I went to see Dr. Boyle today in Dayton because my sensitivities have developed to the point where it is impossible for me to stay in Ohio -- even living outside in a tent -- and on my travels west last month I found I got sick whenever I went into buildings. He recommended a series of shots known in the US as LDA and in the UK and Canada as EPD. I've been reading about these and have found the following links.

    On Dr. Myhills site from Friends of EPD, a UK organization of patients

    Dr. Boyle says these shots are "the only thing that will help someone with as many sensitivities as you have." He says the US study was closed down by the FDA because traditional allergists opposed something that was cheap and effective and would cut into their income. Dr Myhill also writes enthusiastically about it for her ME patients.

    I am reluctant to get into another expensive, although I am also intrigued at the prospect of doing something to quiet down my reactive system in addition to moving to a drier climate and would like to hear from people who've tried it or are trying it now. If I do it, I will not work with Dr. boyle because I don't want to have to travel backk to Ohio every two months. Not sure where I'll go though.
  2. ukxmrv

    ukxmrv Senior Member

    I've had EPD for both food allergies and inhaled allergies (i.e. pollen) and it did help me. Took a long time to get to the peak effect (i.e. over a year plus). Dr Myhill may be enthusiastic but I know her patients of hers that got bad reactions to the shots. I had mine at the Royal London Homeopathic Hospital.

    What the EPD did nothing for was my allergy to animals.
  3. baccarat

    baccarat Senior Member

    My MCS developed as a result of low dose immunotherapy and it got to a point where I could not live in my house nor eat anything. Most smells would make me sick and most foods would cause severe reactions. I went for a week without been able to eat anything as any food would trigger a reaction and at that point I even thought I would not survive.
    I never tried EPD but I'd tread carefully there, as with any therapy that's supposed to "affect" the immune system.
    I have subsequently read reports of people reacting badly to desensitizing therapies. With immunotherapy the effects tend to slowly reverse over time although after two years I'm still not completely well. The question I'd ask myself, knowing what I know now, is the following: if EPD triggered a paradox reaction, would this be reversible over time?

    there are a number of approaches to heal from MCS and you may want to look into as many as possible. Here's just a couple I'm most familiar with

    Two quick remedies I found helpful when I was at my lowest were B12 hydroxycobalamin (Dr Ziem's MCS protocol) and a pendant that seems to relax the autonomic nervous system
    They did not resolve my problems but helped through the crisis.

    All my very best.
  4. JanisB

    JanisB Senior Member

    Central Ohio
    This is all very interesting, and it helps a lot in deciding against it for now. I've been hurt by too many medical procedures, and now that I'm finally finding something that makes a huge difference, I sure don't want to mess it up. Thanks to all for your responses.
  5. Flashster


    EPD Helped A lot

    I was unable to eat anything without major digestive issues. I became intolerant (due to M.E.) to just about every food group. Nothing helped, and it got worse and worse.

    The EPD was a last resort, and despite having been told it would not work by many people for multiple food intolerances with M.E., it did. In fact in 9 years of having M.E., I'd say that it was the thing that has made the biggest difference.

    I was on a rotation diet and then did EPD for about 2 years (started to work after shot 3), and my food/digestion issues virtually disappeared. I didn't have any more shots. It also helped with my asthma.

    I write this as I've just heard that EPD will no longer be available in the UK after the New Year, unless someone in Europe starts manufacturing it(?). I gather the LDA in the US is thriving.

    You'll find a lot of sceptics with this sort of treatment so all I can say is, from my personal experience, and in my humble oppinion, it should be mainstream treatment for people with M.E. and intolerances.

  6. Jenny

    Jenny Senior Member


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