Ehler Danlos Syndrome as the cause of POTS

[Iritu1021]

I just got diagnosed with EDS by cardiologist who specializes with POTS. I got a maximum score on exam, and all my clinical history and exam findings were consistent with this diagnosis. It really ties together pretty much all of the problems I've had for most of my life - excessive scarring, poor wound healing, "double-jointedness", GI problems, easy bruising, brain fog, difficult pregnancy, poor circulation, muscle pain, joint and spine problems, poor sleep, etc. Essentially the blood gets trapped in my legs due to highly elastic veins and I suspect that this reduced circulation may even explain susceptibility to upper respiratory illnesses that led to CFS over the years. It's an autosomal dominant condition so now I need to have both of my kids genotyped too since they have 50/50 percent chance of inheriting it.
I might be moving over to EDS forum now but I just wanted to pass this on in case there are others here who might be missing this diagnosis since there is such a high cross-over between ME/CFS and EDS.

 

[Bob]

Thank you for sharing, Iritu. Wishing you the very best for managing your illness in the future.