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Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.
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Just added and started that one two days ago
All I can say is that the algae cause me severe problems with herpes reactivations. If the cimetidine is amazing, why mess around with the other stuff?
Would you expand on why you think this is your experience ? I appreciate your responses and information.
Thanks much
That's too bad. Have you tried combining the algae with something that might help control the herpes? I find that astragalus helps, but there are other options I could think of, such as olive leaf or monolaurin.It is incredibly annoying because algae are an otherwise very effective treatment for all my ME/CFS symptoms
That's too bad. Have you tried combining the algae with something that might help control the herpes? I find that astragalus helps, but there are other options I could think of, such as olive leaf or monolaurin.
I agree the Tagamet is best for acute periods and not forever long term most likely. But for now it is helping so much I will stick with it.
Thank you Sidereal about the comments about Algae and to be honest I feel you right to not mess around adding too many new things right now. What is ironic the second you typed facial twitching and around the eyes it was that same day I started the algae it was starting up to happen to me and maybe you sent me that message exactly on time. I am not sure but I am not going to mess around with it. THANKS AGAIN!!!!
I am actually. Every day I am noticing a less severity of the symptoms a bit and even though every few days a bit of a surge its a 10 steps forward and 2 backward thing.
The Tagamet has been life saver really in just getting through this and dealing with the severe pain of this episode which is attacking my nerves quite strongly.
My immunity really is struggling I can feel it. It takes a lot longer for me to get over anything even if its a common ailment or even would healing or anything at all.
EBV can take months for a normal person to get through and over even if reactivation.
I was wondering. Did you go through any detailed immunity testing and work and was it helpful? I know the immune system is complex and though I have battled things from birth that have been infection upon infection and I work hard to keep strong as possible but as soon as I see a clearing seems a new infection takes a turn or an old one shows back up. Its pretty frustrating!!
do you think EBV is causing your nerve pain and other symptoms? I'm no doctor but your symptoms sound nothing like EBV to me. From what you've described here it sounds more like reactivation of varicella zoster (the virus that causes shingles) and herpes simplex. They're the ones that live in the nerves.