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Dr Ros Vallings speaking in Auckland, New Zealand: 6th October 2018

Discussion in 'Upcoming ME/CFS Events' started by CFSNZ, Sep 26, 2018.

  1. CFSNZ

    CFSNZ

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    Hi all,

    From the ME Auckland Facebook page:


    We are pleased to announce that Dr Ros Vallings will be speaking at the ME Auckland AGM! All are welcome to attend - details below [​IMG]

    Dr Vallings will be holding an "ask me anything" session, whereby you can submit a question for her to answer.

    Got a question for Dr Vallings? We'd love to hear it! Please post your question in the thread below, or email to manager@meauckland.org.nz so we can submit it on your behalf.

    The session will be recorded and we will publish the video including her answers.

    Dr Ros Vallings is widely regarded as New Zealand's leading ME/CFS expert. You can find out more about Ros here: http://www.drvallings.co.nz/about-ros.html

    Aside from hearing Dr Vallings speak, the ME Auckland AGM is an opportunity to learn more about what our organisation has been doing for people with ME/CFS and/or FM over the last year, meet other members of the community and enjoy some tasty nibbles!

    All are welcome [​IMG]

    Date: Saturday, 6th October 2018
    Time: 1.30pm to 3.00pm
    Venue: Sandringham Community Centre Mainhall, 18-20 Kitchener Rd, Sandringham, Auckland , 1025

    [​IMG]
     
  2. Blue Lantern

    Blue Lantern

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    Cheers for the update. Have there been any questions listed already? Thank you for opting to record & post the meeting online.

    A few I have pooled from a group focused around the mixed paths to diagnosis & difficulties with specialist referrals, as well as lack of access to health specialists:

    Preamble: As it affects multiple systems and organs it would be difficult for anyone to be able to see even a couple of specialists publicly so there is a fragmented patchwork approach that leads many people astray.
    Q part 1: It would be interesting to find out if the public system has a process to diagnosis ME, and approach to treat it versus the more available private specialists who are more familiar with it?
    Q part 2: Even discounting autoimmune conditions require several tests through the public system. What specialists would/should be available, and what tests would be used?
     
    CFSNZ likes this.
  3. CFSNZ

    CFSNZ

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    No problem and thanks for your question!

    We received around 20 questions which should be plenty for Ros to talk too. They were due yesterday so we could send to Ros in advance, but will try and sneak your one in too :)

    We'll send the video out to members once it's ready. Should be around a month and can join here if you want to receive the email:

    http://www.meauckland.org.nz/join-us

    Note membership is free :)
     
  4. CFSNZ

    CFSNZ

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    Hi @Blue Lantern

    Tried to PM you Ros' answer but the forum wouldn't let me. Please feel free to drop me a message and I'll send to you :)
     
  5. Blue Lantern

    Blue Lantern

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    Thank you. Yes some forum features have been a bit buggy, still trying to work way around. Heard the talk was recorded, is there an online link to it you can post?
     

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