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Dr Peter Rowe webinar on conditions that cause PEM - Thurs July 16 2015

Discussion in 'Upcoming ME/CFS Events' started by Sasha, Jul 12, 2015.

  1. Sasha

    Sasha Fine, thank you

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    Lovely guy, Dr Peter Rowe, and he's a paediatric cardiologist who runs the CFS Center for kids at John Hopkins in the US. He's a specialist in OI and its connection to CFS.

    He's giving a Solve ME/CFS webinar at 6-7 pm BST (I think that's 1-2pm New York time?) this Thursday on what should be a fascinating subject:

    Edit: can't believe I forgot to provide the link:

    http://solvecfs.org/smci-2015-webinar-series/

    or that you can email your questions to him:

     
    Last edited: Jul 13, 2015
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  2. barbc56

    barbc56 Senior Member

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  3. Sasha

    Sasha Fine, thank you

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    I've edited my top message with the email address to send questions for him. Great opportunity!

    This is a terrific webinar series that Solve are putting on, BTW. Here's what's coming up and what has recently been done - and a presentation on PEM by Lily Chu from earlier this year can be viewed on YouTube:

     
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  4. Sasha

    Sasha Fine, thank you

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    A little bump for this - if you want to send a question in you need to register (easy) then email it in.

    I imagine he's getting a lot of questions, so best do it now!
     
  5. Sasha

    Sasha Fine, thank you

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    Bump! This is tomorrow.
     
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  6. Sasha

    Sasha Fine, thank you

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    This is today - very much looking forward to this.
     
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  7. bertiedog

    bertiedog Senior Member

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    Have just registered for today, thanks for the notification. I hope to learn a lot because I am not even sure if I suffer with PEM, often I feel better for a limited amount of gentle exercise but I do have a diagnosis of Lyme. That is not to say I don't have terrible problems with my muscles!

    Pam
     
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  8. Sasha

    Sasha Fine, thank you

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    An hour and 20 mins to go - register now if you haven't already!
     
  9. Sasha

    Sasha Fine, thank you

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    17 minutes... drumroll...
     
  10. bertiedog

    bertiedog Senior Member

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    I fell asleep for the last 20 minutes so will have to watch the You Tube recording though I did learn that I definitely do have a mild form of PEM!

    Pam
     
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  11. Sasha

    Sasha Fine, thank you

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    Interesting, and I'm looking forward to the answers to patients' questions that he's going to provide on Solve's blog.

    They expect to post this on Youtube pretty fast - today or tomorrow. :thumbsup:

    Thank you, Solve! Dr Rowe is a quality act.
     
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  12. Sasha

    Sasha Fine, thank you

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    Happens to me all the time with these talks...
     
  13. eafw

    eafw Senior Member

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    Thanks for this Sasha, I just watched it though missed the first bit. It will be on youtube at some point too.

    This graph shows difference between controls and "CFS" after exercise in terms of gene expressions. Don't fully understand implications of the gene bit, but quite a contrast.

    IMG_0290.PNG
     
    Last edited: Jul 16, 2015
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  14. Sasha

    Sasha Fine, thank you

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    I think that graph was on the front cover of the journal that published it, it was so striking.
     
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  15. eafw

    eafw Senior Member

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    do you know where it was originally from ? I hadn't seen it before
     
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  16. Sasha

    Sasha Fine, thank you

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    Excellent question - I can never find it and I'd like to print it off, with a reference! I just looked on PubMed and couldn't find it.
     
  17. Kati

    Kati Patient in training

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  18. Effi

    Effi Senior Member

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  19. Hutan

    Hutan Senior Member

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    Gosh that study by Dr Alan Light et al is interesting. It should certainly be on the 'must read list' for people interested in ME.

    What has happened on this since? Has it been replicated by others?
     
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  20. Dolphin

    Dolphin Senior Member

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    Although I believe the data is from that study, I don't think it was posted in that form in the paper.

    By searching for "all cfs patients (both those with and without FM)"
    I did find it here in
    Translational Pain Research: From Mouse to Man
    Lawrence Kruger, ‎Alan R Light - 2009 - ‎Health & Fitness

    https://books.google.de/books?hl=en...nts (both those with and without FM)"&f=false
     
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