Phoenix Rising supports the Millions Missing global day of protest
Phoenix Rising is delighted to support the demands being made in the ME/CFS community’s first-ever global day of protest …
Discuss the article on the Forums.

Dr Nahle's June letter- invitation to join 'ALL OF US'

Discussion in 'General ME/CFS News' started by Kati, Jun 24, 2017.

  1. Kati

    Kati Patient in training

    Messages:
    5,475
    Likes:
    19,644
    http://solvecfs.org/june-2017-research-1st-dr-nahle-letter/

    On this editorial piece on Solve ME/cfs, Dr Nahle discusses the US precision medicine project called "All of us". It is important in my views that US patients participate in this big project, because it puts us patients 'on the map'.

    Here is an exerpt:


    Read more at the link above and more importantly, if you are from the US, participate.
     
    Last edited: Jun 24, 2017
  2. voner

    voner Senior Member

    Messages:
    567
    Likes:
    904
    @Kati,

    thanks for posting that. The director of the project, Eric Dishman, has a series of short videos describing some of the basics of the program. the of the project's "Core Values" is transparency. certainly a change from what this community has experienced in the past when involved with the US federal government . Mr. Dishman seems to be refreshingly earnest and motivated.

    when I went and tried to download the app in order to start the process of joining the network (they are in beta testing - a good time to get involved in feedback on the software, etc.), I could never find the app on the ios app store..... anyone else find it?
     
    Kati likes this.
  3. Kati

    Kati Patient in training

    Messages:
    5,475
    Likes:
    19,644
    Hi @voner, glad to hear. Coming from Canada i can't even open the link to the website. I hope others can help
     
  4. Snow Leopard

    Snow Leopard Hibernating

    Messages:
    4,654
    Likes:
    12,563
    South Australia
    Large scale prospective studies like this are certainly interesting!
     
    Kati likes this.

See more popular forum discussions.

Share This Page