Review: 'Through the Shadowlands’ describes Julie Rehmeyer's ME/CFS Odyssey
I should note at the outset that this review is based on an audio version of the galleys and the epilogue from the finished work. Julie Rehmeyer sent me the final version as a PDF, but for some reason my text to voice software (Kurzweil) had issues with it. I understand that it is...
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Dr Lucinda Bateman merges with OFFER Utah to form Bateman Horne Center

Discussion in 'General ME/CFS News' started by Sasha, Jul 4, 2015.

  1. Sasha

    Sasha Fine, thank you

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    UK
  2. Never Give Up

    Never Give Up Collecting improvements, until there's a cure.

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    Anyone know who "Horne" is?

    From the site:

    "It is estimated that 5 million people in the US are affected by Fibromyalgia and ME/CFS—more than those with MS, lupus or many forms of cancer—yet only $15 million in combined federal dollars is dedicated to researching both diseases. The result is a wide research and medical literature gap that has left no standard diagnostic tests and fueled misinformation. Bateman Horne Center takes aim at filling these gaps through integrated research, clinical care and education."

    And,

    "Our Values
    Respectful, personalized, science-based health care that emphasizes patient engagement and education and results in practical and accessible solutions to all regardless of their demographic and socioeconomic background.

    Health care teams that are knowledgeable, empathetic, committed to professional and personal advancement, and trained as good listeners and teachers.

    Research that is based in science, cutting-edge knowledge, creativity and ingenuity.

    Clinic practices that promote safety, technology, 360-degree communication and training opportunities.

    Advocacy that fuels informed and positive health care change."

    That sounds great!

    Interesting, the board of directors includes a disability attorney, people with financial and investment management experience, research experience, healthcare resource experience, an EdD, a mind body health psychologist, a living with pain and fatigue counselor, and a student from the U of Utah.

    They also have research and education sections.

    Go, Dr. Bateman!
     
    aimossy, Valentijn, beaker and 3 others like this.

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