Welcome to Phoenix Rising!
Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.
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This is why people should not kill themselves, if at all possible. There's always the possibility that some seemingly improbable positive events happen.
As am I. I think that the only thing that could hold this effort back now is poor inclusion criteria.I'm deeply impressed by the extent of the research program that Mady has outlined.
I was thinking of Vanessa too as I was writing my notes and posting the information. And I was thinking exactly the same as you.I haven't been able to get Vanessa Li out of my mind the last couple of days. It's too sad that she isn't here to see the results of all she did...
100 % agree. And we already got rtx and cyclo as possible treatments coming up, and i guess ampligen and valcyte too..
what is cyto,please?
thanks
Yes, I am very optimistic about this. Seriously, I think the ME riddle will be solved within the next few years. With this amount of sophistication, the disease must show its trace somewhere, somehow.The sophistication of their program is impressive. They are looking for 1.7m viruses, and antibodies to them. And they are now delving into autoimmunity, looking for autoantibodies. That's on top of the proteomics and metabolomics etc. The amount of data they're going to have is utterly phenomenal. I've no idea how they're going to process it all. And they want to connect dots, to make associations between various immune markers and genes and signs of pathogens.