Julie Rehmeyer's 'Through the Shadowlands'
Writer Never Give Up talks about Julie Rehmeyer's new book "Through the Shadowlands: A Science Writer's Odyssey into an Illness Science Doesn't Understand" and shares an interview with Julie ...
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Do your children have ME/CFS?

Discussion in 'Lifestyle Management' started by _Kim_, Jan 8, 2010.


Do Your Children Have ME/CFS?

  1. I have 1 child with ME/CFS

    28 vote(s)
  2. I have more than one child with ME/CFS

    7 vote(s)
  3. I have other children that do not have ME/CFS

    10 vote(s)
  4. None of my children have ME/CFS

    30 vote(s)
  5. I, the parent, do not have ME/CFS

    3 vote(s)
  6. I, the parent, was the first member of the family to have ME/CFS symptoms

    29 vote(s)
  7. I, the parent, became ill AFTER my children

    5 vote(s)
  8. One of my children showed ME/CFS symptoms first

    1 vote(s)
  9. We all became ill at the same time

    2 vote(s)
Multiple votes are allowed.
  1. dfwmom


    One daughter has diagnoses for CRPS in remission (that was pure Hell), Primary Juvenile Fibromyalgia and Chronic Fatigue Syndrome. She also has MTHFR and a genetically reduced ability to convert beta carotene into A. Her grandmother on her Dad's side was diagnosed with Fibromyalgia later in life, and was fully disabled by her mid-twenties from it. I am not as sick as my daughter, but I've always had a severe energy deficit and mood symptoms, and have stumbled through my life in bewilderment about how people could have that much energy and why I couldn't. When my allergies get bad, I get something close to narcolepsy, which my daughter also gets on those same days. I'm pretty sure I'm halfway there, and her Dad is halfway there, and my daughter got the full enchilada, genetically speaking. My other daughter has misphonia (she has the gene for that, which my other daughter does not have) and mood symptoms. We laugh about all the sensory sensitivities in our household. My older daughter has been accused of being a vampire for her aversion to sunlight, and ability to hear people talking in their homes at the end of the street.

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