A small group of ME/CFS patients with an interest in research, including Simon McGrath, Graham McPhee, Carly Maryhew and others, are asking for the help of fellow ME/CFS patients with an important issue that will affect biomedical research in the US and elsewhere for years to come.
The NIH/CDC are looking for feedback on how they propose researchers should measure aspects of ME/CFS patients’ health in all future research – including on how to determine whether a person experiences post-exertional malaise (PEM) and is therefore an ME/CFS patient.
However, there may be serious problems with the proposed method. Your views are needed - hence the poll.
The poll is here. The deadline is Wednesday 24 January.
And please spread the poll on social media. The more responses, the more accurate the poll and the more weight it will carry with the NIH/CDC.
So, do the poll! Spread the poll! This is important!
The NIH/CDC are looking for feedback on how they propose researchers should measure aspects of ME/CFS patients’ health in all future research – including on how to determine whether a person experiences post-exertional malaise (PEM) and is therefore an ME/CFS patient.
However, there may be serious problems with the proposed method. Your views are needed - hence the poll.
The poll is here. The deadline is Wednesday 24 January.
And please spread the poll on social media. The more responses, the more accurate the poll and the more weight it will carry with the NIH/CDC.
So, do the poll! Spread the poll! This is important!