Hi,
I'm new to this forum and just wrote an introduction post for those who want to have some more background information (http://forums.phoenixrising.me/index.php?threads/hi-im-casper-and-im-tired.58366/).
I’ve been dealing with fatigue and brain fog since January 2017 and I’m wondering about your opinions on whether it might be CFS or not. These are my symptoms:
- Unrefreshing sleep (I wake up tired), even though I usually get 8 hours of sleep.
- Fatigue.
- Brain fog. My brain still functions well enough for me to recently have started studying parttime again (a few hours a day), but when I have to focus on difficult topics I notice how it’s really difficult for me and how my thinking level is not the same as it was before this started. It’s worse on days that I’m more tired.
- Heavy legs. My legs often feel heavy, even though I don’t do sports anymore since this started.
- Inability to exercise. When I try biking for 15 minutes on a high tempo I just notice how my legs have no power.
- Tired eyes. My eyes often feel so tired. Now I do have to add to this that I do spend a lot of time staring into my laptop or tv.
I’ve read quite a bit on this forum, and I see that a lot of people have a lot more physical symptoms. I don’t, and I’m also not sure whether I have PEM. For me it feels when I exercise (for example walking for 30 mins) that I do feel more tired directly afterwards and that my mental fatigue/brain fog has increased. However, I’ve never experienced crashing in the sense that I felt ill or something after exercise. But to be fair I also haven’t pushed myself to my limits in a long time.
I’m not sure if it’s immediately relevant, but I also have a good tolerance for alcohol. With New Years Eve I decided to once not let the fatigue determine my actions, so I went out with friends and drank a lot. We started drinking at 6 pm, and were in bars from 11pm to 5am in the morning, dancing a lot as well. I drank 2 redbulls over the night and a lot of alcohol and was feeling great during the night. I did get a bit sick 2 days later, but considering the fact that I had drank a lot for the first time in 9 months this wasn’t so surprising and personally I don’t think it really was PEM.
I have been tested on a lot, but to be honest I don’t know what exactly has been tested. But when this started I’ve been to the hospital multiple times, they’ve checked my blood, my urine and my stool for anything related to tiredness and everything came back normal. I’ve also had a sleep study done, also no results. Finally, I went to a centre for chronic fatigue in the Netherlands (https://www.cvsmemc.nl/), where they did some neurological tests and a physical test. On the neurological test I scored around the baseline (so according to that test I was fine neurologically), but I don’t feel fine neurologically, and I clearly notice decreased mental capabilities. The exercise test had me bike on a hometrainer with increasing resistance until I couldn’t do it anymore. I performed at 80% of what an average person of my weight, height, age and sex should do, so that showed that something was not right. It also showed that my VO2-max was significantly lower than it should be and that I had high lactate values after the exercise.
I also did the Visual Sensitivy Contrast test (vcstest.com) which was positive, indicating that I have a condition which might affect my eyes. One example of that (which is how I got to it) is mold, which to me seems unlikely but it is something I’m considering. What is also important to note is that the flu that started this and the resulting fatigue started the day after I moved places, and since then I haven’t been away from my new place for more than 10 days.
Now I’m basically wondering what people here think about my situation:
- Do I have CFS?
And does anybody have, keeping in mind my symptoms, suggestions for treatments? Some ideas I have:
- Resting more than I need (say rest 15 minutes every hour).
- Isosorbide dinitrate. I read it helped somebody who was also tolerant to alcohol, which is basically my line of reasoning why it could help for me.
- Other supplements like l-carnitine (already taking this for 3 weeks with no effect so far), D-Ribose, CoQ10, Melatonin.
This post became longer than I intended, thanks for those of you that took the time to read it
I'm new to this forum and just wrote an introduction post for those who want to have some more background information (http://forums.phoenixrising.me/index.php?threads/hi-im-casper-and-im-tired.58366/).
I’ve been dealing with fatigue and brain fog since January 2017 and I’m wondering about your opinions on whether it might be CFS or not. These are my symptoms:
- Unrefreshing sleep (I wake up tired), even though I usually get 8 hours of sleep.
- Fatigue.
- Brain fog. My brain still functions well enough for me to recently have started studying parttime again (a few hours a day), but when I have to focus on difficult topics I notice how it’s really difficult for me and how my thinking level is not the same as it was before this started. It’s worse on days that I’m more tired.
- Heavy legs. My legs often feel heavy, even though I don’t do sports anymore since this started.
- Inability to exercise. When I try biking for 15 minutes on a high tempo I just notice how my legs have no power.
- Tired eyes. My eyes often feel so tired. Now I do have to add to this that I do spend a lot of time staring into my laptop or tv.
I’ve read quite a bit on this forum, and I see that a lot of people have a lot more physical symptoms. I don’t, and I’m also not sure whether I have PEM. For me it feels when I exercise (for example walking for 30 mins) that I do feel more tired directly afterwards and that my mental fatigue/brain fog has increased. However, I’ve never experienced crashing in the sense that I felt ill or something after exercise. But to be fair I also haven’t pushed myself to my limits in a long time.
I’m not sure if it’s immediately relevant, but I also have a good tolerance for alcohol. With New Years Eve I decided to once not let the fatigue determine my actions, so I went out with friends and drank a lot. We started drinking at 6 pm, and were in bars from 11pm to 5am in the morning, dancing a lot as well. I drank 2 redbulls over the night and a lot of alcohol and was feeling great during the night. I did get a bit sick 2 days later, but considering the fact that I had drank a lot for the first time in 9 months this wasn’t so surprising and personally I don’t think it really was PEM.
I have been tested on a lot, but to be honest I don’t know what exactly has been tested. But when this started I’ve been to the hospital multiple times, they’ve checked my blood, my urine and my stool for anything related to tiredness and everything came back normal. I’ve also had a sleep study done, also no results. Finally, I went to a centre for chronic fatigue in the Netherlands (https://www.cvsmemc.nl/), where they did some neurological tests and a physical test. On the neurological test I scored around the baseline (so according to that test I was fine neurologically), but I don’t feel fine neurologically, and I clearly notice decreased mental capabilities. The exercise test had me bike on a hometrainer with increasing resistance until I couldn’t do it anymore. I performed at 80% of what an average person of my weight, height, age and sex should do, so that showed that something was not right. It also showed that my VO2-max was significantly lower than it should be and that I had high lactate values after the exercise.
I also did the Visual Sensitivy Contrast test (vcstest.com) which was positive, indicating that I have a condition which might affect my eyes. One example of that (which is how I got to it) is mold, which to me seems unlikely but it is something I’m considering. What is also important to note is that the flu that started this and the resulting fatigue started the day after I moved places, and since then I haven’t been away from my new place for more than 10 days.
Now I’m basically wondering what people here think about my situation:
- Do I have CFS?
And does anybody have, keeping in mind my symptoms, suggestions for treatments? Some ideas I have:
- Resting more than I need (say rest 15 minutes every hour).
- Isosorbide dinitrate. I read it helped somebody who was also tolerant to alcohol, which is basically my line of reasoning why it could help for me.
- Other supplements like l-carnitine (already taking this for 3 weeks with no effect so far), D-Ribose, CoQ10, Melatonin.
This post became longer than I intended, thanks for those of you that took the time to read it