Hi Aerose, sorry I don't have an answer to your question - actually if i'm honest your question is of that type that for some reason I cant seem to understand today.
I have always thought that M.E is very similar to MS in that it seems to have different 'types' of the same thing, that mean different ways of progressing. I have noticed that exactly like MS we have patients who:
Progress steadily with no improvements, or rapidly over the years and just get worse. These patients tend to never have 'good' days or weeks. Their symptoms do not appear to fluctuate much at all. Equates to primary progressive in MS
Have a relapsing remitting course to their illness. Within this group some have occasional 'good' or 'better' days, weeks or even months. Some patients in this group seem to go into 'remission' either wholly or partly for months or even years before relapsing again. Some patients in this group have a tendency to improve slowly over time. Equates to relapsing remitting in MS.
The final group appears to be a group that started as relapsing remitting but becomes progressive after a severe relapse and either continue to progress downhill or never get back to original functioning. Equates to secondary progressive in MS.
For myself I have been mainly in the relapsing remitting - in fact I had a remission to near normal for nearly 10 years of this illness, but then relapsed seriously 6 years ago after a nasty bout of measles, pneumonia and pleurisy.
for the first few years of the relapse I was continuously ill with no improvement, but once again my illness has become slightly more fluctuating and I have occasional good days, although last year I had good weeks, this year this has been very limited.
My health is much worse this time around, as compared to when I was first ill, despite still having a tendency to slightly improve over time I have not got back to the very mildly functioning I was before.
This makes me wonder if, like with MS I have moved from the relapsing remitting group to the secondary progressive.
Just my meandering thoughts!
Justy.