Cinders66
Senior Member
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I was able to seem normal in activity and life and was generally very physically active - hiking and team sports- probably much more than considered average . However as a child and teen and before getting ill I found swimming and cross country running & aerobics extremely exhausting (I'd collapse on the floor afterwards but no PEM) which was odd as I was generally sporty and could play netball/basketball etc regularly and as well as my peers. Maybe these are most physically straining types of exercise, what they call physical endurance. I even had to refuse to do a fun run on the sand / beach as I felt it would be crushingly tough on my legs and body and just thought I was a wimp/others odd for doing something so gruelling. I went to the Drs regarding the weakness/breathlessness after these specific activities suspecting asthma as I was generally pretty fit so it didn't make sense but there was no sign of it and I recieved a pat on the head.
Looking back I definitely see this as a red flag for energy production issues that existed before the whole multi system disease with marked incapacition and symptoms attacked. So yes, I think it points to an Archiles heel regarding energy in some, in some way biologically but it was such a slight "sign" none of us suspected anything seriously abnormal. If only we had
Looking back I definitely see this as a red flag for energy production issues that existed before the whole multi system disease with marked incapacition and symptoms attacked. So yes, I think it points to an Archiles heel regarding energy in some, in some way biologically but it was such a slight "sign" none of us suspected anything seriously abnormal. If only we had
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