I hadn't even heard of macrophagic myofasciitis until a couple of years ago but I've definitely thought about it since, particularly as the symptoms described match my own to a tee. But I live in the UK, and how on earth would I get a diagnosis? MMF doesn't even seem to be acknowledged in the NICE Guidelines so far as I can see. It's also complicated by the fact that, at many periods prior to the vaccination, I would have met a diagnosis of ME/ CFS - had problems on and off ever since glandular fever twenty years before the fateful vaccine. But I had been very well for about five years before the jab, and had in fact never been fitter, and I never before experienced many of the worst symptoms of the post-vaccine illness in any way, shape or form. I wonder what would happen if I were to try to discuss getting an MMF diagnosis with my GP. Should I have a go and report back here how I get on? It would probably be good to know whether an MMF diagnosis is a practical possibility in England. I don't live a million miles from Keele, so if the normal medical route fails, I wonder if it would be worth trying to get in touch with Chris Exley? Any thoughts?