A New Decade of ME Research: The 11th Invest in ME International ME Conference 2016
Mark Berry presents the first in a series of articles on the 11th Invest in ME International ME Conference in London ...
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Did LDN help your POTS?

Discussion in 'Problems Standing: Orthostatic Intolerance; POTS' started by sb4, Nov 8, 2016.

?

Did LDN help?

  1. yes - hyper pots

    0 vote(s)
    0.0%
  2. yes - other pots

    0 vote(s)
    0.0%
  3. yes - unknown pots type

    0 vote(s)
    0.0%
  4. no - hyper pots

    0 vote(s)
    0.0%
  5. no - other pots

    3 vote(s)
    75.0%
  6. no - unknown pots type

    1 vote(s)
    25.0%
  1. sb4

    sb4 Senior Member

    Messages:
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    717
    United Kingdom
    Trying to piece together pots types, antibodies, and treatment.
     
  2. alice111

    alice111 Senior Member

    Messages:
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    329
    Canada
    LDN definitely helped me, but my pots is the one thing it hasn't touched
     
    sb4 likes this.
  3. IreneF

    IreneF Senior Member

    Messages:
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    2,575
    San Francisco
    Dunno. I can take showers now, but I'm not sure why.
     
  4. ahmo

    ahmo Senior Member

    Messages:
    4,447
    Likes:
    6,806
    Northcoast NSW, Australia
    Don't know how/whether LDN, which increased my stamina, related to POTS. I consider myself w/ POTS-lite. Just wanted to point out that there's some suggestion of an autoimmune and mast cell involvement. Mast cell stabilizers have helped me. Acupuncturist also recommended schizandra tea, which seems to have really helped stabilize BP.

    Here's where I read about these connections:
    http://journals.lww.com/jaapa/Abstr...g_postural_orthostatic_tachycardia.99877.aspx
     
    sb4 likes this.

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