Discussion in 'Latest ME/CFS Research' started by slayadragon, Apr 11, 2013.
@foxy loxy - see above.
I am on quite a lot of things. I am on Mepron, Azithromycin, Cryptolepis, Coartem, Clindamycin, and recently added in Daraprim. I am doing better!!! Yes, that is all for Babesia.
I am not on any meds particularly for Bartonella, and I believe Clindamycin can hit Lyme a bit.
If you have questions you could start a private conversation so we don't hijack this thread about mycotoxins!
All the best!
What is the current situation with this? Anyone improved doing something?
@Ifish -- 'Rinsing' your sinuses w/Bactoferm...
Do you have a recipe that has worked for you? In other words, how much sterilized water to how much Bactoferm? Also, I'm assuming there's no histamine reaction with l. sakei despite that when it's used for meats, it helps produce histamine?
I've asked a few questions on that blog over the last year, but haven't taken the leap. Good to hear it's helping you. Another to consider is l. plantarum if you have issues with dust mites.
Thanks in advance,
I mix 1/8 tsp in 5ml distilled water. Any way you can send it up your nose is fine. I use a NasoNeb. Of all the substances I have sent up my nose over the years this is the most pleasant. It is very mild.
Thanks @Ifish -- good to know it's mild. I hope to get some in the next month and give it a try.
hi all. i think i contaminated my EDTA solution thanks to my brain not working at all. my local doctor wont prescribe it.i brought it from the USA. so now i am wondering...has anyone done just the Nystatin and had good results?
i read a 2015 paper by Brewer where he said its possible EDTA wouldnt be needed.
I stopped using the EDTA ever a long time ago. I am fairly sure it is not necessary. Brewer has told me that he has other patients who quit the EDTA and have done as well without it
I started on brewers new formula & got flu symptoms: swollen lymph nodes runny nose & 2 nights if hellacious brain inflammation.
I don’t recall the last time I got a cold or flu BUT my boyfriend had just gotten over one.
I asked Brewer if it could be an IRIS reaction . He said yes.
So 2/3 days of a nasal spray & boom immune activation...weird right?
I stopped the nasal spray but the cold is passing now.
I use EDTA suppositories, Its great for preventing heart disease (calcium chelator) and it breaks down biofilms, makes me feel more normal in the short term.
As far as herxing:
I was on cholestyramine for mold/lyme and hit a huge herx, I heard using other binders for the cholestyrmine might help so I took a scoop of glucomannan and later pooped out a short rope of fungus practically and that helped with the herxing. I was shocked because I do a low sugar diet and try and eat healthy most of the time.
The edta is just a biofilm buster.,,the antifungal is the core of the treatment.
I wasn’t herxing. I was having an inflammatory reaction..maybe histamine. Maybe metals.
I have always had trouble disiguishing herx vs macas/cirs. I usually just do a 1 oz shot of pure lemon juice on an empty stomach, in 15 minutes I get about 90 minutes of relief if it is a mycotoxin/endotoxin herx but I get no relief or change at all if it is a histamine/mast cell/ peroxide inflammatory response.
Well then there's anti histamines for a histamine response and DMSA for removing toxic metals...
Cholestyramine for lyme/mold toxins.
Hi All. I have a friend who needs an atomizer but I cannot find any of them in Canada (NasaTouch or Rhino Clear). I did find the Rhino Clear in Italy but it looks really expensive + shipping too.
Has anyone managed to buy one at a reasonable price in Canada? If not, does anyone know of a place in the USA that will mail internationally? I bought mine at WoodlandHills when I was in the USA but I am pretty sure they do not mail outside the USA....
I have seen several of them on eBay and some of the sellers will ship internationally but in the past I have used an e-cigarette before as well as an ultrasonic humidifier and even an incense device which was essentially a miniature ultrasonic mister. Most doctors will prescribe a nebulizer they can be modified to use specifically in the nose.
@stetson28 did this protocol help you?
hi all. i am wondering if anyone had MMP-9, VEGF, TGFBeta, etc tested before they took medicines for mold illness...?
Yes my vgef was slightly elevated outside of range but my tgfbeta was 29000! Roughly 10 times the upper limit of normal. I never retested.
Yes. But I haven' gotten them again after starting treatment.
My MMP9 was high normal, VEGF normal, TGFBeta was SKY high 27000!, C3a normal, C4a SKY high like 10x normal.
You can also try a Google Site Search
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