David Tuller tours Down Under!

[simeyss]

David Tuller will be touring Australia as part of his 12 month crowdfunded work for ME/CFS in mid-March. Event details are yet to be finalised, but he will be in Australia for 4-6 weeks. I will post updates of events to this thread as they are available.

 

[Countrygirl]

Message from ME Action.

*** Paceman Down Under!***

We are pleased to announce that the Paceman, David Tuller, will be coming to Australia, as part of his 12 month crowd-funded work in ME/CFS, from mid-March.

David is a US journalist and academic who has written extensively about the flaws in the PACE trial. He has spearheaded open letters to the journals The Lancet and Psychological Medicine, seeking PACE trial data to be reanalysed, and for one of the PACE papers to be retracted. His analysis of the flaws in the GET research has been very useful for patients and advocates around the world.

Here is an article he wrote with fellow journalist, Julie Rehmeyer, in the New York Times in 2017:
https://www.nytimes.com/…/getting-it-wrong-on-chronic-fatig…

You can read many articles he has written about PACE and the GET literature on the Virology blog:
http://www.virology.ws/mecfs/

David will be in Australia for approximately 4-6 weeks. Event details are still being finalised, though we can confirm that David is wanting to visit as many states and territories as he can. We will post details of his tour once they are confirmed.

• 
  The #MEAction Network Australia's post.
  
  

 

[Diwi9]

David Tuller is incredible. He has not put one penny of the crowd-sourced funds to waste. His voice and clarity have been vital in keeping us from being completely forgotten. I hope he does some great digging in Australia

 

[simeyss]

Dates and locations for David Tuller’s Australia tour (subject to change):
Edit: the dates below have been changed. These are the current dates.
Melbourne: Mar 16-20
Canberra: Mar 21-23
Sydney: Mar 24-Apr 1
Hobart: Apr 2-4
Adelaide: Apr 5-11
Perth: Apr 12-17
Brisbane/Gold Coast: Apr 18-22
Lismore: Apr 23-25

Details of public events which David will be attending will be made available as we have them.

https://www.facebook.com/MEActionNetworkAustralia/posts/1604732336261792

 

[simeyss]

Some updates on David Tuller’s Australian trip:

Emerge Australia will be live streaming a Q&A event on Facebook, which will take place on Friday March 16, at 2.30pm Melbourne time. You can access the livestream from their Facebook page:
https://www.facebook.com/EmergeAustraliaInc/
They are open to people sending them questions, which you can do by emailing them: information@emerge.org.au

David is also part of a discussion panel at a screening of Unrest on Sunday March 18. Also on the panel will be Chris Armstrong and Neil McGregor from Melbourne Bioanalytics, Fane Mensah from UCL, and patient advocate Anna Kerr. There is a possibility that the discussion will be recorded, but that is all depending on logistics and has yet to be confirmed.

David will be in Canberra for political meetings, but there won’t be a public event.

Other public events are being organised, but details aren’t yet finalised, so I can’t share them yet.

 

[simeyss]

Details of David Tuller events in Queensland:

There are two confirmed events, and a possible third.

****************************
Friday April 20, 2pm-4pm.
This event is hosted by ME/CFS Australia Ltd.
Speakers:
Dr David Tuller (journalist and academic)
Dr John L Whiting (Infectious Disease specialist)
Kathy Dallest (pwME telling her journey)
Will include Q&A at the end.

Location:
Brisbane (Hamilton Town Hall, Racecourse Rd, Ascot). Venue is air-conditioned, and wheelchair accessible. Public transport is available, with a nearby bus stop. Some disabled car parking is available on site, as well as street parking. Light catering provided (including gluten and dairy-free).


****************************

Monday April 23 (time TBC)
Gold Coast, (Varsity Lakes - venue to be confirmed)
Program being finalised.
This event is hosted by Fibromyalgia and CFS Gold Coast Support group

****************************

There is also a possibility of an event in Toowomba event, subject to available dates

****************************

Details of how to book (free) tickets to these events will be made available soon.

 

[simeyss]

Details of Sydney public event:

Sunday March 25: 1pm-3pm
Thai Pothong Restaurant function room
294 King St Newtown
http://www.thaipothong.com.au/newtown
This is a free event (plus optional lunch, with gluten and dairy free options). The venue is wheelchair accessible, and close to public transport (50 metres from Newtown Station and bus stops). Limited on- street parking.

***RSVP ASAP ****
Claudia Heath: ruthcrh@gmail.com
Sally James: sallykjames51@gmail.com

 

[thewibble]

Just to clarify this event will indeed be this Sunday - but 25th March (not 23rd).

 

[simeyss]

Just to clarify this event will indeed be this Sunday - but 25th March (not 23rd).

Thank you! Yes, my mistake. It is definitely Sunday March 25. I’ve fixed the post now.

 

[simeyss]

*** Free public lecture: University of Tasmania, College of Health and Medicine ***

“Chronic Fatigue Syndrome (aka ME) – Challenging the accepted dogma through research journalism”

Speaker: US journalist and academic, David Tuller

Date: Wednesday 4 April, 2018 (note the link below has Tues April 4. That date is incorrect and is in the process of being updated).
Time: 5.00 - 6.00pm
Location: Room 206, Level 2, Medical Science 1, 17 Liverpool Street, Hobart

No rsvp required

More information about this lecture: http://collegeofhealthandmedicine.cmail20.com/t/ViewEmail/j/31F06A89CA1EE3E32540EF23F30FEDED

Note: this lecture is targeted at an academic audience, however members of the ME/CFS community are also welcome.

 

[simeyss]

It’s now possible to book tickets for the Brisbane event:

*** Free public event in Brisbane ***

“ME/CFS: What’s all the fuss about?”

Friday April 20, 2pm-4pm.
This event is hosted by ME/CFS Australia Ltd & ME/CFS/FM Support Assoc of Qld Inc
Speakers:
Dr David Tuller (journalist and academic)
Dr John L Whiting (Infectious Disease specialist)
Kathy Dallest (sharing her lived experience of the illness)
This event will include a Q&A at the end.

Seats are limited, so booking is essential. For more details and to book tickets:
https://www.eventbrite.com/e/mecfs-whats-all-the-fuss-about-tickets-44393854213

 

[simeyss]

Details of Adelaide public event:

“David Tuller is coming to Adelaide! Don't miss this unique opportunity to hear David talk on PACE followed by a 'meet and greet'.

Tuesday 10th April at SACOSS, 47 King William Road, Unley, in the Marjorie Black Community Room.
Time: 7:15 for a 7:30 pm start, until 9 pm.

There is plenty of off street parking and the venue is wheelchair and MCS friendly. If you are able to help set up please come at 7 pm and if you are able to help out with the tea and coffee and packing up afterwards, we would be very grateful.
Gold coin donation at the door.”

This event is hosted by ME/CFS Australia (SA).

 

[simeyss]

Details of the Gold Coast public event:

“Quality and safety for people with ME/CFS: Rethinking exercise guidelines.”

Mon Apr 23, 11:00 am – 12:30 pm (AEST)
Conference room
Robina Community Centre
196 Robina Town Centre Drive
Robina

Learn why we need to think differently about exercise for people with ME/CFS and how damaging it can be when inappropriately promoted. You can help improve the quality of life for these people who are marginalised and unseen within our communities by hearing the latest research and information.

Speakers:
Dr David Tuller, Senior Research Fellow, public health academic and journalist from the Centre of Global Public Health, University of California Berkeley. Crowdfunded to gather information about biomedical research into the disease in Australia and learn from the ME/CFS community.

Therese Fossheim, Senior Physiotherapist and Exercise Scientist at Physiologic, Robina. Therese is also an experienced metabolic consultant who helps people with ME/CFS to use objective heart rate monitoring to better manage their energy envelope.

Kathy Dallest is a person with ME/CFS for over 18 years and is the Fibromyalgia and CFS Gold Coast support group facilitator. Having worked in health for many years she now advocates for the ME/CFS community and is especially interested in quality and safety.

This is a free event, and is hosted by ME/CFS/FM Support Association QLD Inc and Fibromyalgia and CFS Gold Coast Support Group. Places are limited, so bookings are required.

For more details about this event, and to book tickets, please click here: https://www.eventbrite.com.au/e/qua...nking-exercise-guidelines-tickets-44750821913

 

[simeyss]

Details of public events in Perth.

“The PACE Trial on Trial”
Sunday April 15, 11am

This is a free event. Bookings are essential
For more details and to book: https://www.trybooking.com/book/event?eid=370824&

There will be a lecture on the same topic at 3pm, with a target audience of health and other professionals. For more details about the second event, or to book tickets: https://www.trybooking.com/book/event?eid=370826&