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Danish ME/CFS patients' health-related quality of life (EQ-5D) and life satisfaction from 2013-2014

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Bob

Senior Member
Messages
16,455
Location
England (south coast)
Danish ME/CFS patients' health-related quality of life (EQ-5D) and life satisfaction from 2013 to 2014.
http://www.me-foreningen.dk/images/stories/me-cfs/pdf/me rapport_12032014_final.pdf

The above report is in Danish, but there's a short English explanation here:
http://www.followmeindenmark.blogspot.dk/2014/03/eq-5d-scores-for-danish-mecfs-patients.html

The ME Association in Denmark has taken the initiative to launch this Danish study in collaboration with the author, PhD Fellow Michael Falk Hvidberg from Aalborg University, who are working with the quality of life of chronic diseases.

The ME Association distributed a questionnaire to the members and 94 participated in the study. Data collection occurred from ult. 2013 to early 2014.

The study shows ME/CFS patients have the lowest quality of life compared to 21 diseases. In fact, quality of life for ME/CFS patients is significantly lower for 17 of the 20 diseases. This is regardless of whether you look upon the average or median.
Click to expand...

EQ+5D.bmp
 
V

Valentijn

Senior Member
Messages
15,786
As a somewhat useful reference point, the 6th one down (Sclerose) seems to be MS. So a somewhat similar group of symptoms, disability, and range in severity, but with a significantly higher quality of life.
 
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