Our Newly Ill Face Their First Holiday Season with ME/CFS
Don't look now! The holiday season is on its way. I've lived through decades of them with ME/CFS. So have many of you in our chronically ill community. That's beyond sad for all of us. But at least we have some idea what we're contending with, and have learned our ways of handling...
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Daily Mail UK come on side!

Discussion in 'General ME/CFS News' started by jace, Jun 8, 2010.

  1. jace

    jace Off the fence

    By the way... at last I've been convinced that ME is real
    11:00 PM on 7th June 2010 By DR MARTIN SCURR

    ME can be difficult to diagnose. I admit it, I was wrong. For many years, I - like many of my medical colleagues - have blamed ME on psychological or behavioural causes. Then, last month, I attended the 5th World Conference on ME/CFS (myalgic encephalomyelitis/chronic fatigue syndrome). There I spoke to a number of experts who were emphatic that the evidence shows the condition really does have a viral origin.

    This has never previously been clear - before, there had been only hazy circumstantial evidence. There have been two problems really; first, identifying the cases - who does and who does not have ME/CFS? The second, how to tell if any identified bacteria or virus is actually the cause of a disease, or merely there by chance (and not actually involved in the disease process). When it comes to diagnosing ME, it's always been difficult distinguishing it from another common but hard-to-prove condition, depressive illness. Both involve the major symptom of fatigue - a gross tiredness unlike any other, such is its overwhelming severity.

    Both are associated with sleep disturbance, impairment of memory and concentration, emotional symptoms - indeed, there are many in the medical profession who have long considered that those who believe they have ME/CFS have a form of depression and are in denial. But there is one challenging difference: those with ME/CFS have a flare of their malaise lasting at least 24 hours after physical exertion, whereas people with depression - if they can manage exercise - tend to be briefly a bit better.

    At the conference, a number of plausible ideas were advanced for the condition, including one from Professor Brigitte Huber, an immunologist from Boston. She explained that 8 per cent of all the DNANA in our bodies is basically a form of infection - it's become incorporated into the genetic code of our cells. This infection 'gene' gets switched on whenever you catch a common viral illness - such as glandular fever or herpes simplex (the type that gives you cold sores). T his triggers the immune system to pour out vast quantities of chemicals which cause widespread effects such as muscle pain and exhaustion.

    In most patients, this reaction stops after a week or two as they recover - the immune system puts the infection gene back to bed. But in a small number of people this doesn't happen, so the immune cells continue to be activated, causing grief, and the illness becomes ME/CFS. Knowing why this happens still needs to be explored. But it is an exciting time and some solace to those who have this awful illness and have never been believed.

    Read more: http://www.dailymail.co.uk/health/article-1284795/You-CAN-beat-misery-piles.html#ixzz0qGWjqtrE
    scroll down to the third article, after piles and old man's drip

  2. pollycbr125

    pollycbr125 Senior Member

  3. jace

    jace Off the fence


    For our American cousins, the Daily Mail is a mass market right wing mid-level paper, with a popular web site, and they've been knocking us for ages.

    Can one have too much good news?
  4. L'engle

    L'engle moogle

    Hooray! Thanks, Jace.
  5. Min

    Min Guest

    I totally disagree, I think the Mail has been absolutely wonderful over the last few months in telling the truth about our illness (within its limitations as a tabloid). They had this last month:


    The Independent has also been good.The Guardian and Observer have repeatedly published only the Wessely school of thought, even when pretending to show all opinions.
  6. Esther12

    Esther12 Senior Member

    I hate the Mail, but they've generally been okay on CFS.

    This article is embarrassing though. It's good to have it published to show people what CFS patients have to put up with, and just how silly many doctors are.
  7. usedtobeperkytina

    usedtobeperkytina Senior Member

    Clay, Alabama
    Good point, Esther. A convert who can speak to what has been claimed is true about the view of many doctors.


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