The 12th Invest in ME Research Conference June, 2017, Part 2
MEMum presents the second article in a series of three about the recent 12th Invest In ME International Conference (IIMEC12) in London.
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Cyclo part A recovery scale ?

Discussion in 'Rituximab: News and Research' started by Frenchguy, Apr 8, 2018.

  1. Frenchguy

    Frenchguy

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    Hi evereyone,

    Does anyone know the scale Fluge and Mella used to monitoring improvement in cyclo study ?

    Anecdotal reports say that people can walk 13000 steps per day after 6 months and function to 35%.
    When I see that, I am intrigued,

    David
     
    Last edited: Apr 8, 2018
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  2. pibee

    pibee Senior Member

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    Do you mean that one patient they mentioned who walked 200 steps before Cyclo, and 13,000 after?

    And how is walking 13,000 steps = 35% of functioning?
    13,000 steps should be = healthy.

    Or i misunderstood you
     
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  3. Frenchguy

    Frenchguy

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    Yes, i am not sure about the numbers but this is the idea
     
  4. pibee

    pibee Senior Member

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    All I know the results are "better than for Rituximab " (Phase II), which would mean 65% responded at least. Which is very promissing.
     
  5. Frenchguy

    Frenchguy

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    If they say that based on phase 2, yes, but the phase 3 is negative.
    I like the fact that they measured the average step per day. Maybe if they had measured that in Ritux phase 2, the results would be different.

    I don't say that for you, but for people who currently think that rituximab is an option for true ME.
     
    pibee likes this.
  6. pibee

    pibee Senior Member

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    yah, comparing it to negative Phase III and saying how it's 'even better' would be a bit silly so I doubt they meant Phase III :)
     

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