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Crawley to spread misinformation about ME to international group of paeds. in Sweden

Discussion in 'General ME/CFS News' started by Countrygirl, Jan 2, 2018.

  1. Countrygirl

    Countrygirl Senior Member

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    A worrying but inevitable development: Esther Crawley is invited to Sweden to spread her damaging, erroneous information about paediatric ME to an international group of paediatricians.

    It is referred to as 'Chronic Fatigue'........but she will no doubt claim this is an alternative name for ME.

    On behalf of the UK, Sweden, we do apologise for the harm one of our medics is about to cause to your children................:(:ill::aghhh:


    http://espidmeeting.org/2018/scientific-information/confirmed-invited-speakers#.WkvCJd9l-yK

    http://espidmeeting.org/2018/scientific-information/meet-the-professor-sessions1#.WkvD4d9l-yI

    What the PID doctor needs to know Chronic Fatigue
     
    keenly and Joh like this.
  2. Revel

    Revel Senior Member

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    ESPID's Board President is Adam Finn, Professor of Paediatrics at University of Bristol. By coincidence, of course . . .
     
    Countrygirl likes this.
  3. andyguitar

    andyguitar Senior Member

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    Ah now then.....on the face of it it's bad news she has got a platform. But it also gives the other speakers and audience the chance to form the opinion that she is talking cr*p. This might be her downfall.
     
  4. Mary

    Mary Forum Support Assistant

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    It's interesting that this is the European Society for Paediatric Infectious Diseases - I don't think their mindset as a group would tend towards the BPS model (at least I hope not!)
     
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  5. Countrygirl

    Countrygirl Senior Member

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    She is very good at presenting an appealing and charming front to the audience though. I wouldn;t be too sure that they will make an accurate judgement unless they already do know some of the genuine facts about ME. She is persuasive to those who know nothing.
     
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  6. lnester7

    lnester7 Seven

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    The only thing would be to distribute the IOm report on Cfs or / and contact them to add somebody else
     
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  7. Countrygirl

    Countrygirl Senior Member

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    Good catch @Revel :thumbsup:
     
  8. keenly

    keenly Senior Member

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    Why is this women invited to speak about anything? She is clueless and presents NO evidence of what she speaks.
     
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  9. Revel

    Revel Senior Member

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    "Chronic fatigue" is not an uncommon symptom following many a viral illness.

    Crawley seems happy to concede that ME/CFS can be triggered by a viral illness. However, she then has a tendency to change her narrative from the physical to psych by implying that patients continue to exhibit "sickness behaviour" long after the virus has ceased to be active. Her treatments involve subjecting patients to CBT/GET to "encourage" them back into their normal lives.

    Rather than discussing ME/CFS as such, I would expect that she will be targeting "chronic fatigue" found in other viral illnesses and suggesting to her peers that they consider applying her treatment protocol to their patients.

    The Lightning Process might be too much of a hard sell to the Ebola and HIV specialists attending, but I wouldn't put it past her to beguile some with those trademark slide shows and engaging stories of hers . . .
     
  10. andyguitar

    andyguitar Senior Member

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    It will certainly be interesting to see how Crawley gets on trying to sell her ideas to a group of people who may well wonder what on earth she is doing there.
     
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  11. thegodofpleasure

    thegodofpleasure Player in a Greek Tragedy

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  12. thegodofpleasure

    thegodofpleasure Player in a Greek Tragedy

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    MEMum and Countrygirl like this.
  13. thegodofpleasure

    thegodofpleasure Player in a Greek Tragedy

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    Countrygirl likes this.
  14. Mary

    Mary Forum Support Assistant

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    @Countrygirl - do you think it would be possible to do something such as @lnester7 suggested and provide ESPID with correct information about ME/CFS and about how damaging Esther Crawley and her "treatments" are? Maybe even suggest another speaker who was credible and knowledgeable? I thought of David Tuller though I guess if he were able and allowed to go, I would suggest that he just address the science and leave out everything about Crawley's libel claims, etc., nothing to detract from the serious core issues of ME/CFS.

    eta: or Jen Brea?
     
    Last edited: Jan 3, 2018
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  15. lnester7

    lnester7 Seven

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    Agreed do not engage EC. Distriute right materials and maybe a good presentation on real science ( including the excercise one For 2 day Cpet testing.
    I would not put David Tuller and AC in the same room at this point, that will not end well. Spaecially since the host is from Bristol ( BPS club)
     
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  16. Countrygirl

    Countrygirl Senior Member

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    This sounds an ecellent idea.

    Sounds a good and interesting project for TeamPR to spring into opertion to slove.

    Perhaps brainstorm to obtain more ideas and then we can discuss the way ahead,
     
    Mary likes this.
  17. Mary

    Mary Forum Support Assistant

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    It also occurred to me that perhaps a real scientist like Ron Davis (I know, I'm dreaming!) would be ideal ...

    Anyways, brainstorming sounds great!
     
  18. Revel

    Revel Senior Member

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    There is no indication as yet as to the subject matter of EC's involvement at ESPID - no mention so far of ME, only "chronic fatigue". This may be an oversight on their part and they are referring to CFS, or it could mean exactly what it says.

    Besides, who would you send the information to, the President of the Board, Adam Finn? The list of confirmed speakers? Targeting EC in this way would only feed into her claims of "harassment".

    Better to wait and see what comes of this and act in response if necessary.
     
    MEMum, andyguitar and Skycloud like this.
  19. arboretum

    arboretum

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    The fact that they've invited her doesn't necessarily mean they support her viewpoints. Also, often when scientists talk to other scientists they are a bit more conservative in what they say, claim or imply, because they know there's a greater likelihood of being challenged.

    Anyway, I don't think there's any point in trying to prevent her speaking at conferences. The fact that someone is wrong or against the scientific consensus isn't usually enough to prevent that. The point of conferences, also, is that you invite people whether you agree with them or not, or whether their views are generally accepted or not.
     
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