Lipkin's Monster ME/CFS Study: Microbes, Immunity & Big Data
The Microbe Discovery Project outlines an ambitious new study by top researchers that has collected patient samples, but needs desperately funds to complete the work.
Discuss the article on the Forums.

crash getting worse...after doing something : (

Discussion in 'Post-Exertional Malaise, Fatigue, and Crashes' started by hurtingallthetimet, May 21, 2012.

  1. hurtingallthetimet

    hurtingallthetimet Senior Member

    id posted about going to my kids graduation and lunch after...i still dont regret it..i crashed of course..but woke up today feeling so much more worse...feel feverish...and im at 99.0 right now..usual 97.6 or so but even if get 98.0 i feel like a i have a bad fever...98.0 now to me is like 101 when i was healthy...

    i hurt all crying...not in a good tired of crashing...i felt really really bad because i bascailly was crying very hard and praying and asking God why do i have to go through this? why does notihing good ever happen? thats what i felt bad about....i konw i shouldnt question God...but im tired of being sick...tired if i do anything at all...i crash after...been laying down as usual off and on...its weird my legs will hurt so badly...ive been diagnosed with restless legs and doctors explained me feeling need to move legs at night or them jerking...but they hurt and ache so badly its like i have to get up during day to to move around...really hadnt thought of restless legs other than a night issue...

    just venting...and also guess the guilt of being upset to God makes me feel badly as a person...
  2. taniaaust1

    taniaaust1 Senior Member

    Sth Australia
    Im wondering if you've taken what you did there into full consideration and planned into your schedule of things to have a "recovery" period after that event.

    eg. If I go to some big event.. I will plan to have a very very slow week the week after that big event. This "helps" to prevent issues.

    I plan and do preemptive resting 1-2 days before any big event.. and plan for it after (when I was sicker, I used to plan a 2 week recover period afterwards and do aggressive rest therapy after any big event for a week or two).

    With ME one cant expect to just jump back into ones normal routine after a big event and need to make allowences for that. Control how much you are doing or the illness will be in control of you.

    Many good lessons can come out of being so ill. One of them is learning how to self love and put oneself first.
  3. Sushi

    Sushi Moderation Resource Albuquerque

    Hurting, sounds like it might be good for you to be in touch with other patients--preferably face to face. In a way you are "preaching to the choir" -- none of us have good answers to questions like "why do I have to go through this?" This is just our reality...for right now... for all of us...and we have to deal with it as intelligently as we can.

    That is where spending time with others in the same boat can help--we can't answer the questions of "why" but but we can support each other in "how."

    taniaaust1 likes this.
  4. ukxmrv

    ukxmrv Senior Member

    Hurting, I'm not surprised that you would feel that way. Lots of people would feel the same. Religious writers and thinkers have been considering the topic of suffering for a long time.

    You are not alone and you should not feel to blame. Be easy on yourself and try to imagine what you would say to a loved one who was suffering like you are. You deserve understanding and compassion too.
  5. elbosque


    Hurtingallthe time, my specialist prescribed a special cream that has to be made by a compounding pharmacist. Many nights I have gone through excruciating pain and little sleep which of course exacerbates the symptoms. Here is what is on the pharmacy label of the jar: 50 CC DICLO10BACLO4GABA4KETA5. The pharmacist told me that one of the ingredients in it is a nerve blocker. All I can say is that it is a miracle cream for me. To "handle" my night time pain, I take 25-50 mg of nortriptyline, 1000 mg of fast acting Tylenol and 400 mg of fast acting Ibuprofin. That was not handling it and I did not want to start using narcotics. For daytime pain, I just use Tylenor, Ibuprofin and other pain coping strategies. If i can walk, I walk a bit. Or, I do deep breathing. Or, just trying to focus on something else that interests me.

See more popular forum discussions.

Share This Page