Coyne - What it takes for Queen Mary to declare a request for scientific data “vexatious”

[Large Donner]

Does anyone know when the deadline is for a response to Coynes request? Is it today as its now 20 days after the acknowledgement?

 

[Keela Too]

That's what I thought. That or yesterday - he did a tweet near midnight last night about the seconds ticking by....

 

[Kati]

That's what I thought. That or yesterday - he did a tweet near midnight last night about the seconds ticking by....

It might be 20 business days and not 20 calendar days.

 

[Bob]

I calculate the deadline to be midnight Friday 11th Dec UK time. It's 20 working days starting the day after the request. The request was 13th Nov.

Edited: cos I originally said 4th Dec. (My digital calendar on my PC confused me!)

 

[Large Donner]

I calculate the deadline to be midnight Friday UK time. It's 20 working days starting the day after the request.

On that basis I count it as Friday 11th Nov is that the day you mean Bob?

 

[Woolie]

 

[biophile]

And indeed the study cost 4-million pounds to undertake but the allegations and the freedom of information requests and the legal fees that have been wrapped up over the years because of these vexatious claims has added another 750,000 pounds of taxpayers' money to the conduct of this study.

But we know it cost 5 million pounds. I recall something about a 700,000 pound extension. PACE claim to have evidence that anti-PACE advocates slowed down recruitment so they needed an extension. Where's the evidence? Anyway that's 50,000 pounds left, which not all may be information requests, since we don't know the breakdown or how it was estimated.

 

[Bob]

On that basis I count it as Friday 11th Nov is that the day you mean Bob?

The info was asked for on 13th Nov. I think 20 days takes us to midnight, Fri 11th Dec.

Edited, cos I had the date wrong.

 

[biophile]

The email in Coyne's blog says 20 day limit, but if it's 20 business days as Kati suggested, that would be 28 days.

Making the deadline the 11th of December if asked for on the 13th of November?

 

[Bob]

Yes, thanks @biophile and @Large Donner, I meant Fri 11th December. (Last time I rely on a digital calendar for counting days!) (My digital calendar on my PC confused me!)

 

[Kyla]

But we know it cost 5 million pounds. I recall something about a 700,000 pound extension. PACE claim to have evidence that anti-PACE advocates slowed down recruitment so they needed an extension. Where's the evidence? Anyway that's 50,000 pounds left, which not all may be information requests, since we don't know the breakdown or how it was estimated.

This was the point though to me, its a 'gotcha'.

Either this statement was unfounded propaganda
or
They have spent an exorbitant sum of money for the purposes of hiding the data, while making claims it would be "too costly" to release it.

I can't really see a third option.

 

[worldbackwards]

An update on the data:

https://jcoynester.wordpress.com/20...l-request-for-release-of-the-pace-trial-data/

A "response" is promised by the 11th. Though not the data.

 

[Ritto]

An update on the data:

https://jcoynester.wordpress.com/20...l-request-for-release-of-the-pace-trial-data/

A "response" is promised by the 11th. Though not the data.

£750k to keep data secret!

Who paid?

 

[Kati]

My twitter account got suspended temporarily, i am not totally sure why but one of the possibility is that somebody complained about my tweets. Did that occur with anybody else?

 

[Valentijn]

My twitter account got suspended temporarily, i am not totally sure why but one of the possibility is that somebody complained about my tweets. Did that occur wirpth anybody else?

Mine is fine, and yours looks normal to me. But I'm a Twitter n00b, and have no idea if suspended accounts look different

 

[SOC]

Speaking of vexatious ---

I'm finding the projectile vomiting up of massive amounts of untruths about ME in 'clever' little lightweight articles that get distributed across the world for physicians to read (two of which were posted by the US NLM recently) extremely vexatious. Good lord, do they (whoever 'they' is -- SMC?) roll out this volume of drivel about any other single disease, or are we special?

 

[Sean]

We are special because we dare contradict the self-appointed guardians of scientific truth, by pointing out nasty little facts.

 

[Sean]

...by pointing out nasty little facts.

Often produced by their own studies, no less.

 

[ahimsa]

My twitter account got suspended temporarily, i am not totally sure why but one of the possibility is that somebody complained about my tweets. Did that occur with anybody else?

Sorry that happened! I have no idea why. My twitter account is not used as much. I've definitely never had it suspended. I don't think anyone has complained about me but not sure whether I'd know.

I have gotten followed or re-tweeted by porn accounts (sigh). And not just soft core porn but videos of .... well, use your imagination. I found this out by going to look at who followed or re-tweeted me.

Why me? I'm clueless. One time it was in response to the Van Ness video about 2-day CPET, exercise testing - maybe exercise was a keyword? Who knows? Maybe they just spam everyone/anyone who is remotely active? And others don't notice?

Anyway, my first reaction was to report them all. It's not an easy, straightforward process. You can't just click on the account's profile or on a single tweet. That will just get it marked as sensitive or something like that. You have to go somewhere on the twitter support page (forgot all the details) to actually report them. Then hope the twitter folks will eventually suspend the account (they did a couple of times). It's a lot of hassle so these days I just block the accounts.

This is a long-winded way of saying that it's a pretty long and deliberate process to get a twitter account suspended.

Someone would have to be pretty motivated to do it. Who on earth would do that to your account and why???

 

[alex3619]

I can't really see a third option.

Ummm, I can see them saying it was a simple error in reporting. However to substantiate that they have to clarify the real situation.