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Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.
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The letter stated "Chronic fatigue is not the same as ME/CFS".I think she should have stated that people like Esther Crawley are conflating ME with chronic fatigue.
Many, many thanks - yet again - to the Countess of Mar.
One wonders how deep the rot goes in the UK establishment. If ignorance were all we had to deal with we would surely have got the message through by now.
The letter did clearly state it is a formal complaint, which at the very least means it has to trigger some form of response handling within the BBC. I think, but not sure, that statutory legislation might kick in if she does not get some sort of response.Wonder if she would be able to bring about some form of punishment if the BBC does not respond, being in the house of lords and everything which I think is higher in power than parliament. Well played at any rate.
Does anyone know if there is a timescale within which BBC have to answer a complaint?
We email or post over 90% of replies within 2 weeks (10 working days) but cannot always guarantee this. It will also depend on what your complaint is about, how many others we have and practical issues such as whether a production team is on location or otherwise away.
If you are dissatisfied with our reply you should re-contact us in writing within 20 working days explaining why. You may be able to take the issue further to stage 2 and if so we will explain how. This is normally either to the independent Editorial Complaints Unit or relevant senior management. We publish the findings of complaints upheld or resolved by the Editorial Complaints Unit and those considered at stage 3 on appeal by the BBC Trust in Complaints reports.
I am dissatisfied with their reply to my complaint but brain is too mushy at moment to put together a coherent response.http://www.bbc.co.uk/complaints/handle-complaint/ - there is a lot to read!
This bit may be relevant:-
True but that was in response to the title of the BBC news report, it wasn't in response to the way the likes of Esther Crawley have hijacked ME with studies about chronic fatigue patients, at least that's not the feeling I got when I read it.The letter stated "Chronic fatigue is not the same as ME/CFS".
I am dissatisfied with their reply to my complaint but brain is too mushy at moment to put together a coherent response.
Did anyone else get a standard response they are dissatisfied with? anyone planning on taking it further?
or is there anyone who would like to take the opportunity to write in response on my behalf pm me.
For those who are or will complain about the BBC,
The BBC always passes off the first complaint with a standard response.
You have to re-complain, and then the complaint is seen by someone who was actually involved with the programme. They will try to tell you you are wrong, but with persistence, you might gain some more information that will be useful. (Your chances of success are not very high.)
Then you have to re-complain again, this time to the BBC Trust. You can use any additional information you have gained in the process to bolster your argument.
It is a classic bureaucratic system, functioning as a wearing down process. And, even in cases where the complainant is clearly correct, there is no guarantee of a just outcome.
Mass complaints will be batted away as an 'orchestrated complaint'.
For those still wanting to complain I would recommend that you use any help you can, and read the language used very closely.
On ME? In the UK? No wonder no action was taken against Crawley.GMC’s expert opinion documents
Really is like marking you own homework.On ME? In the UK? No wonder no action was taken against Crawley.