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Countess of Mar becomes a Patron of The MEA

Discussion in 'General ME/CFS Discussion' started by charles shepherd, Jul 20, 2015.

  1. charles shepherd

    charles shepherd Senior Member

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  2. Sasha

    Sasha Fine, thank you

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    Thank you, Countess of Mar! :thumbsup:
     
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  3. jimells

    jimells Senior Member

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    :thumbsup:
     
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  4. Seanko

    Seanko Senior Member

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  5. Valentijn

    Valentijn Senior Member

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    I'm not sure why you think it's a personal vendetta. She does a great deal of advocacy on behalf of ME patients, including that series of open letters to Simon Wessely.
     
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  6. Seanko

    Seanko Senior Member

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    Part of being a patron is being a diplomatic advocate, unfortunately public rants are probably not helpful.
     
  7. Valentijn

    Valentijn Senior Member

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    None of her correspondence has looked like a rant to me. And a certain amount of passion can be quite helpful and even persuasive when correctly applied.
     
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  8. duncan

    duncan Senior Member

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    "...public rants..."

    :wide-eyed:
     
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  9. A.B.

    A.B. Senior Member

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    I think it's good to have advocates that are not afraid to say what needs to be said. The health care system and medical community has failed patients. We shouldn't put on a good face on the matter. The risk with being nice and diplomatic is that it downplays the situation as something like minor annoyance, rather than the human tragedy and catastrophe it is.
     
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  10. Mark

    Mark Former CEO

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    Those objectives are indeed the most important ones, but sadly, with ME there is more that needs to be said. As far as the Countess of Mar's campaigning is concerned, it might all seem like a rant to you Seanko, but are you aware that regarding the most substantive and contentious issue that the Countess has been campaigning on for many years - and the substantive issue that she refers to in that letter, relating to a meeting with Wessely in 1998 - it has recently been revealed that government officials knew of the risks relating to organophosphates in the 1980s and 1990s but did not reveal what they knew publicly?

    The following news story is clear evidence that the Countess was absolutely right in what she has been campaigning on, and that officials knew she was right when she was campaigning on this in the 1980s and 1990s, but covered up that information. Campaigning for increased funding and recognition will not solve the problem on its own if known causes of the illness are being covered up. In those circumstances, it becomes essential to also address the political dimension in order to make progress.

    http://www.theguardian.com/environm...knew-of-farm-poisoning-risk-but-failed-to-act
     
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  11. Seanko

    Seanko Senior Member

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    @Mark

    Thanks for your reply and the information. To represent 1000s of people requires a calm head and some tact & diplomacy.

    The political world of medicine involves building influence and sometimes dealing with people you do not like or those who have different beliefs.

    Making enemies needlessly is self destructive.

    If the Countess can make things less personal, she has more chance of success.
     
  12. A.B.

    A.B. Senior Member

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    And sometimes conflicting views are simply opposed, with no middle ground or agreement being possible. That's okay for me. I do not need to please everyone.

    AIDS is an excellent counter example to your point of view by the way.
     
    Last edited: Jul 26, 2015
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  13. Bob

    Bob

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    I ask myself whether I'd like the Countess on my side or opposing me, and the answer is an easy one!
     
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  14. Aurator

    Aurator Senior Member

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    I suspect the Countess of Mar knows better than most of us how the political world works, and especially the political world of medicine; given her many years of experience I think it's unrealistic to suggest she doesn't.
    Making enemies with people is sometimes the only rational way of proceeding, especially if the people concerned have already given ample evidence of their own hostility to the cause you represent. Here again, the Countess of Mar seems to have a very clear grasp of the position she has adopted. I quote from the letter you linked to:
    "If that means offering honest criticism of individuals who, I believe, are hurting others who are not in a position to speak for themselves I am prepared to take any brickbats that come my way."

    The fact that science still understands so little about ME and the fact that the treatment patients receive is so poor is in no small part a consequence of the activities of certain key individuals who, for whatever reason, have been trying to sweep ME under the carpet for decades. Given the ongoing influence of these key individuals, it's only to be expected that things will get personal from time to time.
     
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  15. AndyPandy

    AndyPandy Making the most of it

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    Countess of Mar :trophy:
     
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