Invest in ME Conference 12: First Class in Every Way
OverTheHills wraps up our series of articles on this year's 12th Invest in ME International Conference (IIMEC12) in London with some reflections on her experience as a patient attending the conference for the first time.
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Cortene Peptide for MECFS? "Curative"?!

Discussion in 'Latest ME/CFS Research' started by Ema, Dec 22, 2017.

  1. Neunistiva

    Neunistiva Senior Member

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    I would be very sceptical and share your sentiment if they were trying to sell us something right away. But isn't this a private company taking a huge risk and conducting a proper scientific trial?

    What do we have to lose? They are the ones taking all the risk.
     
    Thomas, Murph, Ema and 4 others like this.
  2. perrier

    perrier Senior Member

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    Thanks Shannon, so they are in California. Have folks from Stanford been in touch with them? And they don't really give much info about the trial.

    I remember Dr. Majid Ali who wrote Canary in the Coal mine, and he talked about the limbic system non stop.
     
    Mary and pattismith like this.
  3. shannah

    shannah Senior Member

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    I took a screen shot of their 'About' section:
     

    Attached Files:

  4. Diwi9

    Diwi9 Senior Member

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    Pure speculation, but Chheda and Kaufman left OMI to focus on clinical practice. Kogelnik was said to be taking the research route. My guess is that this company will be working the trial through his office.
     
  5. shannah

    shannah Senior Member

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    I thought I read the trials would take place in Utah.
    I would think that would be Lucinda Bateman.
     
  6. Diwi9

    Diwi9 Senior Member

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    Cort's post did reference Lucinda Bateman...but I thought there was reference to a California-based specialist. We'll find out soon enough...hopefully!
     
  7. Navid

    Navid Senior Member

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    Could this have something to do with stmts Dr. Chia made to a patient in recent weeks about some important treatment breaththrough occurring soon. There was a post from a Chia patient last week or the week earlier.

    I wonder if Dr. Kaufman and Dr. Chedda (sp?) know anything about this....and yes, what about Dr. Davis and OMF?

    I hate when stuff like this is all cloaked in mystery. Why will it take Cort 3 blogs to release the full story?

    We've already been waiting 25+ years isn't that enough time to build suspense.

    Thanks for the initial info though, very much appreciated that there may be something to look forward to in terms of treatment. Especially a treatment that might actually fix us and not take a million years and treatments to do so.

    @Ben H (any info from OMF avail?)

    : )
     
    Last edited: Feb 9, 2018
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  8. Neunistiva

    Neunistiva Senior Member

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    I totally forgot about that.
     
  9. neweimear

    neweimear Senior Member

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    @Ben H any hopes on this news, would love to hear what OMF think!
     
    MonkeyMan likes this.
  10. Learner1

    Learner1 Forum Support Assistant

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    I saw Dr. Kaufman 2 days before this came out and he said nothing about it.
     
    Isaiah 58:11 likes this.
  11. neweimear

    neweimear Senior Member

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    Does anyone know how long it takes for a drug to go through trials before hitting the market? I assume if this drug works for a cohort, the process may be hurried along since we have no approved treatments for our disease?
     
  12. Ema

    Ema Senior Member

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    I think so, but @Cort probably knows for sure. :)
     
    Sushi likes this.
  13. Murph

    Murph :)

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    Sorry everybody for seeming like a big old grump. I am pleased someone cares about us enough to run a trial. And I am pleased they're doing a trial before selling the drug. I don't think the probability of success is exactly zero.
     
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  14. katcoff

    katcoff

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    I don't know if it will cure your CFS, but it could grow a lot of nose hair.
     
    nanonug, Learner1, Hip and 1 other person like this.
  15. GodGenghis

    GodGenghis

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    Cort suggested in the comments under the blog post that it could take several years to get through phase ll and phase lll trials.

    However, if the early studies are successful it may be a candidate for designation as a "breakthrough therapy", as we recently saw with MDMA for PTSD, which would expedite the review and possible approval of the drug. This status is granted when "preliminary clinical evidence indicates that the drug may demonstrate substantial improvement" (over other available therapies) per the FDA's website.
     
    Ema and neweimear like this.
  16. Vicki Cole

    Vicki Cole Senior Member

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    U.k
    I also would like to know why the info about this is being withheld in favour of 3 separate blogs... why make us wait? It seems cruel actually. I can't think of a good reason why?...
     
  17. junkcrap50

    junkcrap50 Senior Member

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    Cort's probably writing a lot on the topic, so he broke it up into 3 parts. He might not have finished parts 2 and 3 yet, but wanted to publish the first part now.
     
  18. neweimear

    neweimear Senior Member

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    I can't wait to hear if Nancy Klimas has started her pilot trial on ME /CFS and how it's going...
     
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  19. Ema

    Ema Senior Member

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    Many people with MECFS have trouble processing such a huge amount of information all at once. He does it to help increase comprehension, I'm sure, when the topic at hand is fairly long and complex. It's not like we can all rush out to try it tomorrow anyway, so I don't see the harm. I think it's helpful given so many of us struggle with brain fog and reading in general.
     
    ErdemX, Learner1, MonkeyMan and 3 others like this.
  20. neweimear

    neweimear Senior Member

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    Absolutely, where would be without Cort, he keeps us informed and also keeps hope alive. I think he does an amazing job.
     
    GodGenghis, Lolo, edawg81 and 7 others like this.

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