Please Note -- we have removed a number of off-topic posts from this thread that were unrelated to contributing evidence for the NICE consultations. I would suggest not to use threads on Phoenix Rising to air personal grievances against any ME organization without first being prepared to provide actual evidence and to do so in a manner that doesn't take existing threads off-topic. It's not that we can't discuss ME organizations/charities but it should be part of an on-topic, hopefully, constructive conversation (not always possible) as many members that take part on Phoenix Rising often volunteer for these organizations/charities. Per our policies, any further off-topic comments on this thread will be removed. Thank you.