A New Decade of ME Research: The 11th Invest in ME International ME Conference 2016
Mark Berry presents the first in a series of articles on the 11th Invest in ME International ME Conference in London ...
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Complex Chronic Disease Program (CCDP) Patient Engagement Findings

Discussion in 'General ME/CFS News' started by Tom Kindlon, Nov 19, 2017.

  1. Tom Kindlon

    Tom Kindlon Senior Member

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  2. Tom Kindlon

    Tom Kindlon Senior Member

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    Tom Kindlon Senior Member

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    For me, CCDP support in terms of counselling, nutrition (no referral), info, etc. was hugely disappointing. But I appreciated the medical attention. Initially, I was taken to be a responder to immunovir; later I was started on iron supplements and LDN. Then I was discharged, despite a notation concerning my nutritional needs. Overall, I experienced no improvement in my health status, and my advocacy efforts came to naught. I wasn’t well enough to attend the World Cafe event.

    Edited to add: Perhaps I should acknowledge too the disability paperwork provided by my CCDP treating physician. I’ve received a disability tax credit as well as a parking permit as a result.
     
    Last edited: Nov 19, 2017
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