Review: 'Through the Shadowlands’ describes Julie Rehmeyer's ME/CFS Odyssey
I should note at the outset that this review is based on an audio version of the galleys and the epilogue from the finished work. Julie Rehmeyer sent me the final version as a PDF, but for some reason my text to voice software (Kurzweil) had issues with it. I understand that it is...
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Community Symposium on molecular basis of MECFS! DISCUSSION THREAD!

Discussion in 'Latest ME/CFS Research' started by Ben H, Aug 9, 2017.

  1. Janet Dafoe (Rose49)

    Janet Dafoe (Rose49) Board Member

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    What data are we missing and how can it best be collected?
     
    merylg, simeyss, happy and 20 others like this.
  2. AshleyHalcyoneH

    AshleyHalcyoneH Open Medicine Foundation

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    Bay Area, CA
  3. Nickster

    Nickster Senior Member

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    Love this family of heroes making a difference!
    Thank you for your compassion, brains and unity!
     
  4. Jill

    Jill Senior Member

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    Thank you@AshleyHalcyoneH
    Amazing photo! It's hard enough to get a group photo of 7 people !!! Your efforts are soooo appreciated :)))
     
    merylg, sue la-la, MEMum and 18 others like this.
  5. Cam Newton

    Cam Newton

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    Any info on Mark Davis' findings?
     
    merylg, Sushi, Daisymay and 5 others like this.
  6. Janet Dafoe (Rose49)

    Janet Dafoe (Rose49) Board Member

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    Yes. And Mary Dimmock.
     
    merylg, ahimsa, Sushi and 15 others like this.
  7. Jesse2233

    Jesse2233 Senior Member

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    That's great, can't wait to see their reporting
     
    merylg, Sushi, MEMum and 10 others like this.
  8. unicorn7

    unicorn7 Senior Member

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    This is so exciting! Can't wait till tomorrow:D:D
     
    merylg, Sushi, MEMum and 7 others like this.
  9. Wonko

    Wonko Senior Member

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    The other side.
    If by this you mean increased mental effort can cause physical collapse followed by PEM then I agree, happened to me only a few days ago - and I'm surprised it isn't universal.
     
  10. Ben H

    Ben H OMF Correspondent

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    On a side note every photo I have seen that @AshleyHalcyoneH has taken has been great. Must run in the family with Whitney :)

    P.s. Love Jarred Younger expression at the back left!


    B
     
    merylg, sue la-la, Sushi and 9 others like this.
  11. Mij

    Mij Senior Member

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    Yes, if I'm concentrating for too long I can feel full body exhaustion and my calf muscles become very sore as though I've climbed a mountain.
     
  12. perrier

    perrier Senior Member

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    Yes, for everyone understands the unimaginable urgency for those lying in bed in darkened rooms day after day, month after month, year after year, suffocating their hopes and dreams and trying hard to keep their mind from madness.

    The other question is: what can be used to get the non stop flu feeling down? I would ask that.
     
    Esperanza, merylg, MeSci and 8 others like this.
  13. kelly8

    kelly8 Senior Member

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    I'm looking forward to this tomorrow. Thank you for putting it together and keeping us posted here!
     
    merylg, Sushi, Ben H and 5 others like this.
  14. JaimeS

    JaimeS Senior Member

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    Day 2: @ChrisArmstrong just finished his talk! Lots of fascinating stuff. :D
     
  15. Alvin2

    Alvin2 If humans were rational...

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    As i understand it Saturday's session will be broadcast/youtubed, is the same being done for the other days?
     
  16. Janet Dafoe (Rose49)

    Janet Dafoe (Rose49) Board Member

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    Chris Armstrong starts off the metabolomics session. image.jpeg
     
    NK17, merylg, simeyss and 28 others like this.
  17. Janet Dafoe (Rose49)

    Janet Dafoe (Rose49) Board Member

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    Bob Naviaux up next. image.jpeg
     
    NK17, merylg, simeyss and 26 others like this.
  18. JaimeS

    JaimeS Senior Member

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    Just Saturday. :)
     
    justy, Sushi, Ben H and 6 others like this.
  19. Janet Dafoe (Rose49)

    Janet Dafoe (Rose49) Board Member

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    Jonas Bergquist got us laughing at the beginning of his talk reminding us of the differences between Sweden and Switzerland. He even had a correlation betw amount of chocolate consumed and # Nobels in a country!

    image.jpeg
     
    Last edited: Aug 11, 2017
  20. JaimeS

    JaimeS Senior Member

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    Mid-Ohio Valley, United States

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