International ME/CFS and FM Awareness Day Is On May 12, 2018
Thomas Hennessy, Jr., selected May 12th to be our international awareness day back in 1992. He knew that May 12th had also been the birthday of Florence Nightingale. She was the English army nurse who helped to found the Red Cross as well as the first school of nursing in the world.
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Community Symposium on molecular basis of MECFS! DISCUSSION THREAD!

Discussion in 'Latest ME/CFS Research' started by Ben H, Aug 9, 2017.

  1. Deborah Kavounas

    Deborah Kavounas

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    Great questions! I'll see what I can do.
     
    MEMum, dangermouse, Mary and 6 others like this.
  2. Gingergrrl

    Gingergrrl Senior Member

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    Best wishes to @Webdog and all attending the conference! It sounds amazing, and I look forward to reading the updates on PR.
     
    MeSci, MEMum, dangermouse and 12 others like this.
  3. Janet Dafoe (Rose49)

    Janet Dafoe (Rose49) Board Member

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    Wonderful dinner tonight at the hotel with those who flew in today. image.jpeg
    Alain Moreau, Cindy Bateman, Mario Capphechi

    image.jpeg
    David Bell, Maureen Hansen

    image.jpeg
    David Maughan, Cindy Bateman, Baldomero Olivera, Ron Davis

    image.jpeg
    Linda and Don Tannenbaum, Jonas Bergquist

    And Ashley and I were there too!

    Everyone is excited about this science meeting!
     
    NK17, Esperanza, Forbin and 62 others like this.
  4. Ben H

    Ben H OMF Correspondent

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    Awesome pictures. Thanks for these Janet! It's so nice to see everyone. Baldomero Olivera and Ron look particularly cheeky!


    B
     
    merylg, atleje, MEMum and 24 others like this.
  5. Janet Dafoe (Rose49)

    Janet Dafoe (Rose49) Board Member

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    Ron and Toto (nickname) have been close friends for years. Grad students together at CalTech in the '60s. Toto is awesome!
     
  6. Ben H

    Ben H OMF Correspondent

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    Very cool. So the cheekiness has developed over many years! :rofl:
     
    merylg, sue la-la, MEMum and 15 others like this.
  7. justy

    justy Donate Advocate Demonstrate

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    I would ask Ron, or anyone that would listen what they think about the high prevalence of EDS and MCAS in our patient community. Are people like me with both co morbidities which are worsening over time misdiagnosed as having M.E? and we really just have primary MCAS/EDS? Or is M.E really MCAS, or could we just have both - how on earth are patients like me (who often have clinical Lyme dx as well) meant to unravel all this nonsense?

    secondly familial illness - three generations of women in my family and we didn't all know each other growing up. Who is looking into this and what does it mean? are we another subset?

    Im going to try and watch some live from my bed, but don't know how much ill manage. Thanks to all who are putting on this event, attending, tweeting etc
     
  8. TreePerson

    TreePerson Senior Member

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    Well I can't dance but I've been chanting to the elephant god who removes all obstacles for a while now. I also did it in the UK general election it nearly worked! LOL. Wishing them all so much strength inspiration funding resources and luck.
     
    Last edited: Aug 10, 2017
    merylg, MeSci, MEMum and 17 others like this.
  9. valentinelynx

    valentinelynx Senior Member

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    Looking forward to this! A taste of hope is what I'm hoping for! I'll be there in person, with husband in tow, travel plans willing... First major conference/symposium on ME/CFS I've attended since the AACFS conference in San Francisco in 1996.
     
    Esperanza, merylg, MeSci and 31 others like this.
  10. suseq

    suseq

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    Too true! Another gathering of great minds working collaboratively on our behalf that inspires so much hope and positivity. A much needed contrast to all the negativity surrounding this illness; especially from this side of the pond.

    To all involved : Your belief and faith in our lived experience and willingness to share your expertise and knowledge to work towards positive change is very much appreciated. Thank you.
     
    Last edited: Aug 10, 2017
    merylg, anni66, MEMum and 15 others like this.
  11. Ben H

    Ben H OMF Correspondent

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    So please you and your husband can make it in person @valentinelynx . As well as @Webdog being there too :)


    B
     
    merylg, MeSci, valentinelynx and 9 others like this.
  12. Ben H

    Ben H OMF Correspondent

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    And it begins...

    image1.JPG

    1st Day Science meeting. :eek: :cool::nerd:

    Thanks to @AshleyHalcyoneH for providing and doing all she is doing for us!


    B
     
  13. Janet Dafoe (Rose49)

    Janet Dafoe (Rose49) Board Member

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    Another shot of the group of great minds all focusing on ME/CFS. It's so much fun!
    I can't seem to post the photo. I'm sending it to @Ben Howell to post.
     

    Attached Files:

  14. A.B.

    A.B. Senior Member

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    In the above picture, Mike Snyder is showing a slide titled "CFS Family". The rest of the slide is empty though.
     
    Gemini, Ben H and Aroa like this.
  15. Ben H

    Ben H OMF Correspondent

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    IMG_2059.JPG

    Mike Snyder speaking.
     
    Last edited: Aug 10, 2017
    NK17, Esperanza, merylg and 18 others like this.
  16. Ben H

    Ben H OMF Correspondent

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    Zoom FTW!


    B
     
    MEMum, Daisymay and shannah like this.
  17. Janet Dafoe (Rose49)

    Janet Dafoe (Rose49) Board Member

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    Alain Moreau, from Montreal. image.jpeg
     
    Dechi, merylg, MEMum and 20 others like this.
  18. AshleyHalcyoneH

    AshleyHalcyoneH Open Medicine Foundation

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    All of the graphics will be in the video on youtube and in the DVD after the conference :)
     
    merylg, MEMum, AndyPR and 20 others like this.
  19. Janet Dafoe (Rose49)

    Janet Dafoe (Rose49) Board Member

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    Now this section of talks are done and they are discussing how things fit together and how to move forward and planning collaborations with each other. This is the best part!
     
  20. Mary

    Mary Forum Support Assistant

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    @Ben Howell and @Janet Dafoe (Rose49) - thanks for all the updates and pictures! Janet, I'm so glad you're able to spend some time there! :)

    I wanted to go quite badly, but my son who lived in the area was transferred back to Texas with very little notice - sob! :aghhh: and it would have been too difficult (and expensive) for me to manage with no home base there so to speak. so will the next best thing and watch on-line :nerd:
     

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