Review: 'Through the Shadowlands’ describes Julie Rehmeyer's ME/CFS Odyssey
I should note at the outset that this review is based on an audio version of the galleys and the epilogue from the finished work. Julie Rehmeyer sent me the final version as a PDF, but for some reason my text to voice software (Kurzweil) had issues with it. I understand that it is...
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Community symposium on molecular basis of ME/CFS at Stanford Discussion Thread

Discussion in 'Upcoming ME/CFS Events' started by Ben H, Sep 25, 2018.

  1. Ben H

    Ben H OMF Correspondent

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    Hi guys,

    Thought there should be a discussion thread for the upcoming 2nd Community Symposium seeing as it is very close (link for livestream if you haven't registered and would like to watch: https://livestream.com/accounts/1973198/ME-CFS-2018 )

    Discussion, Twitter posts, questions/ponderings etc all welcome ofc :)


    B,
     
  2. Ben H

    Ben H OMF Correspondent

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    lemonworld, Comet, Binkie4 and 11 others like this.
  3. Gemini

    Gemini Senior Member

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    East Coast USA
  4. Lisa108

    Lisa108 Senior Member

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    I registered some time ago but didn't get any email response or link yet? Am I just too impatient?
     
    Binkie4 likes this.
  5. Ben H

    Ben H OMF Correspondent

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    Awesome, thanks for the support @Gemini

    It's going to be pretty exciting, for sure.


    B
     
    Binkie4 likes this.
  6. Ben H

    Ben H OMF Correspondent

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    Hi @Lisa108

    Thanks for registering. I think that is ok, just keep hold of the link (one above in this thread) and you should be able to log in just fine. You may receive an email on Saturday anyway. :)


    B
     
    Binkie4, bertiedog, Sushi and 2 others like this.
  7. Janet Dafoe (Rose49)

    Janet Dafoe (Rose49) Board Member

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    Here we go! Working group meeting begins. Over 50 great minds! image.jpeg
     
    skandar, Gamboa, RebeccaRe and 28 others like this.
  8. S-VV

    S-VV Senior Member

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    Thank you so much for your effort!!!
     
    Mary, Binkie4, Laurie P and 2 others like this.
  9. perrier

    perrier Senior Member

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    Ben,
    Please just remind us at exactly what time to press the Go Live button.
    Thanks
     
    Binkie4 and ukxmrv like this.
  10. Janet Dafoe (Rose49)

    Janet Dafoe (Rose49) Board Member

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    So far we've heard from Wenzhong Xiao, Alain Moreau, and now Fereshteh Jahaniani. #me/cfs18
     
    lemonworld, Comet, Ruthie24 and 13 others like this.
  11. Janet Dafoe (Rose49)

    Janet Dafoe (Rose49) Board Member

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    Now: Peidong Shen talking about Next Generation DNA sequencing as a tool for ME/CFS research. He's worked with Ron for over 20 years and is a really great scientist.
     
  12. Janet Dafoe (Rose49)

    Janet Dafoe (Rose49) Board Member

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    I'm feeling emotional & kind of blown away by what's happening in this room. A little teary. If only Whitney could see what his dad has organized and all the amazing scientists focusing on this. He'd be so thrilled & proud. I know that knowing Ron is working on it gives him hope!
     
  13. Janet Dafoe (Rose49)

    Janet Dafoe (Rose49) Board Member

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    We heard from Isabel Sylvestre from U Nevada talking about genetics in MECfs and now Alan and Kathleen Light from U Utah, also talking about genetic mutations using RNAseq.
     
  14. Janet Dafoe (Rose49)

    Janet Dafoe (Rose49) Board Member

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  15. Ben H

    Ben H OMF Correspondent

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    Comet, Sing, ukxmrv and 4 others like this.
  16. Janet Dafoe (Rose49)

    Janet Dafoe (Rose49) Board Member

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    Now Rob Phair is presenting the metabolic trap hypothesis. Riveting! #mecfs18
     
  17. Murph

    Murph :)

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    Wish I was a fly on the wall!!

    Looks like the pre-symposium meeting is even bigger than last year. Such a promising sign. :)
     
  18. Janet Dafoe (Rose49)

    Janet Dafoe (Rose49) Board Member

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    So much interest and excitement about metabolic trap! Here's the group: #MECFS18
     

    Attached Files:

    waiting, lemonworld, Comet and 12 others like this.
  19. Janet Dafoe (Rose49)

    Janet Dafoe (Rose49) Board Member

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    Yes! It's over 50 and growing. Last year there were 30. He's recruited a bunch more great people. I'll have to get their names out there to you soon.
     
    Countrygirl, anni66, Mary and 13 others like this.
  20. Janet Dafoe (Rose49)

    Janet Dafoe (Rose49) Board Member

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    Now they are having a long discussion reacting, suggesting, adding related info, ideas, etc. These great scientists working together. It's awesome! #MECFS18
     
    Comet, Ruthie24, Nickster and 11 others like this.

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