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    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

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Colorado Radio Interview

usedtobeperkytina

Senior Member
Messages
1,479
Location
Clay, Alabama
The advertising of MCWPA has led to another radio interview, this time with three patients. Pediatric cases and activities in Washington this week were the focus: http://www.archive.org/details/HolyHormonesMay16-2011SolvingPuzzleChronicFatigueSyndrome

Be sure and thank Leslie Carol through her facebook page: http://www.facebook.com/lesliebotha or by e-mail: leslie@holyhormones.com and station general manager: gm@krfcfm.org.

The public service announcement MCWPA has been distributing has led to a news article on the website of a television station: http://www2.wjbf.com/news/2011/may/13/cfs-awareness-day-ar-1841690/

Also, we are still encouraging people to send Obama a fax message with a cartoon. See this page: http://mcwpa.org/2011/05/message-to-obama/

MCWPA Team
 

Nielk

Senior Member
Messages
6,970
Tina,

I just finished listening to the whole interview. WOW!
Thank you so much for being a super representative for us and our cause. You spoke so well and I am sure that it raised awareness to everyone listening to the show. It was full of information and Leslie Carol showed such empathy for the disease.

Very well done!
 

Nielk

Senior Member
Messages
6,970
I just sent a message to Leslie thanking her for promoting awareness for us.
 

usedtobeperkytina

Senior Member
Messages
1,479
Location
Clay, Alabama
Thank

Thank you.

Please share.

MCWPA had the goal to give a stronger message to the media, within the confines of non-profit organization. This is not "oh loo we are sick". This is "things must change" message.

Tina
 

Nielk

Senior Member
Messages
6,970
I received a very nice reply from Carol and she promised to disseminate more awareness about ME/CFS.