Cold Sweats - What is your other worst symptom

[Mya Symons]

I am having a bad case of the cold sweats today. My body can not decide if it is cold or hot. Stupid autonomic nervous system. Besides the relentless fatigue and dizziness (POTS), I think this is my worst symptom. Even worse than the pain because it is so uncomfortable and annoying. I usually get a chair and sit in the shower and let the water run over me for a while and that helps. However, something is wrong with the water pipes in my complex. Hopefully, they will get it fixed soon.

What is your other worst symptom? Having difficulty with lights being too bright at times I think is a close third because people think I am a crazy lady who wears sunglasses at night.

 

[taniaaust1]

The hot/cold symptom.. is one i dislike too not just due to the discomfort due to it but also due to the amount of energy one is then using up in efforts to try to get comfortable.. clothes coming on/off on/off.. then having to have a bath to cool down or even to heat up. (I had another bout of that symptom a few weeks ago.. so annoying and it drained me). Its still well down on my list of symptoms from worst affecting to lesser affecting thou.

POTS I find the worst symptom for many reasons.. I find it takes even more work to prevent a flare of it then it does for the rest of my ME stuff.

If I over do with activity and ME hits.. usually it will be a slow hit but with POTS.. Im can be completely fine and 30 seconds later (or even quicker eg raising both arms can trigger POTS and have caused me an instant collapse. going to rest both my hands and arms up on a shop counter.. collapsed me) and can be on the floor the next second which is very disturbing if it hits me suddenly bad when out. Its extremely embassessing to have no choice but to lay on the floor of a busy supermarket as suddenly with POTS OI even sitting is no good when a bad POTS attack hits.. the only other option is to try to get out of the shop but I cant make it out if Im suddenly hit with POTS and end up actually unconscious on the floor or in a POTS like seizure if I try. So I can only lay down whenever I are.. no matter how embarrassing it is at the time.

I can not ever leave my house alone due to this symptom as its dangerous. (several mths ago I had a collapse in middle of road due to it and couldnt get back up. My support worker had to stop cars to stop me from being run over). Sadly.. I cant find a doctor to treat it how it probably needs to be .. saline IVs and cant fly myself interstate alone due to it.

Putting on thigh length medical compression stockings for POTS each day is a pain in the arse due to the energy that uses and makes me feel hot in warmer weather and having to constantly drink due to it.. is annoying too (I need to always have a drink bottle in my hand if Im on my feet and if im out and having to drink to try to hold it off as long as possible.. it means Im then needing to pee every 20mins so constantly hunting for toilet when out). Having to keep cool to try to stop POTS symptoms.. costs me heaps in electricial bills.. sometimes my monthly electricity bill is almost as much as what I get paid in 2 weeks of my pension payment all cause of the POTS..

My second worst symptom currently is my hyperinsulinemia issue (which I think combines with my MCS and hence I get severe reactions to high insulin). I really hate the diet I need to be on for it (far more restrictive then a diabetic one) and the diet I need to be on due to this makes me need to eat meat 3 times a day (as I dont eat processed meats and get bored with too much cold chicken) this condition forces me to be having to do a lot of cooking which of cause is using up the small amount of time I can be up on my feet per day doing things eg I cant have just toast or cereal for breakfast as I cant eat those things so hence need to cook.. I cant eat sandwiches and dont like rabbit food salads.. so I have to cook. . If I loose control and break my diet.. I can end up then in a suicidal mood swing or violent and hit someone as the carb reaction I get is so severe (that and I start getting immune symptoms too.. sore throat etc, GERD and other of my symptoms flare.. my body really dont like carbs)..

My new specialist wants me even eatting more restricted then I do now and stopping so many of my other veg which he says are too high in carb for me to be eatting (I already dont eat potatos, carrots or corn.. or much fruit.. only small piece per day.due to the carbs)

(I have three different bad issues currently out of control which the doctors havent as yet managed to help thou we are still trying!!)

 

[ukxmrv]

The PEM is probably the worst for me personally as it can easily make me bedbound which is horrdendous. The sore throats and swollen glands kick in. No amount of pacing or activity management saves me from this as my threshold is so low.

The seasons (usually winter but sometimes others) when I am constantly sick with flu, norovirus, flu, norovirus, infected sinuses etc and cannot get out of bed and just go on and go and on. I hate vomitting into a bucket in the bedroom as I cannot move and I have the choking of a sinus infection that has got out of hand, Trapped in bed with four walls.

 

[ahimsa]

Nausea is the symptom that I hate most. It's easier for me to ignore symptoms like pain, rapid heart rate, shortness of breath, and so on. Nausea is much harder for me to block out.

I get nausea whenever I get a migraine. But I get it more often as one of the pre-syncope symptoms that come on when something triggers my NMH (Neurally Mediated Hypotension), a type of OI (Orthostatic Intolerance). Most folks know these acronyms but I like to spell them out in case there are any newbies reading.

I can often "push through" a lot of my other symptoms (even though I probably shouldn't, and usually "crash" after doing too much) but the nausea is just the worst. It always brings me to grinding halt.

 

[Mya Symons]

I can not ever leave my house alone due to this symptom as its dangerous. (several mths ago I had a collapse in middle of road due to it and couldnt get back up. My support worker had to stop cars to stop me from being run over). Sadly.. I cant find a doctor to treat it how it probably needs to be .. saline IVs and cant fly myself interstate alone due to it.

Wow, Tania, I am so sorry you have to go through this. Once something similar happened to me while I was pregnant (this is when the POTS symptoms were the worst for me). I dropped in the middle of a field that I was cutting to the store and it was pretty terrifying. Eventually I was able to get up. I can't imagine having to go through that everyday.

 

[Mya Symons]

Nausea is the symptom that I hate most. It's easier for me to ignore symptoms like pain, rapid heart rate, shortness of breath, and so on. Nausea is much harder for me to block out.

I get nausea whenever I get a migraine. But I get it more often as one of the pre-syncope symptoms that come on when something triggers my NMH (Neurally Mediated Hypotension), a type of OI (Orthostatic Intolerance). Most folks know these acronyms but I like to spell them out in case there are any newbies reading.

I can often "push through" a lot of my other symptoms (even though I probably shouldn't, and usually "crash" after doing too much) but the nausea is just the worst. It always brings me to grinding halt.

I don't know how, but I forgot about the nausea. I am the same. I can work through the pain, but not the nausea. All I can do is lie there until it goes away.

 

[Seven7]

Really do I have to choose? They are all horrible, PEM , POTs....

 

[taniaaust1]

Nausea is the symptom that I hate most. It's easier for me to ignore symptoms like pain, rapid heart rate, shortness of breath, and so on. Nausea is much harder for me to block out.

I get nausea whenever I get a migraine. But I get it more often as one of the pre-syncope symptoms that come on when something triggers my NMH (Neurally Mediated Hypotension), a type of OI (Orthostatic Intolerance). Most folks know these acronyms but I like to spell them out in case there are any newbies reading.

I can often "push through" a lot of my other symptoms (even though I probably shouldn't, and usually "crash" after doing too much) but the nausea is just the worst. It always brings me to grinding halt.

i find that i respond differently 2 nausea then i do 2 most of the other symptoms. thou it arent as bad as my other symptoms I often get it at times due to the POTS) , the nausea can "emotionally" affect me far more then severe disabiling dizziness can. It can quickly turn me into being a baby and constantly whining about it. Your post got me more thinking about how the severity of my symptoms dont always tally with my emotional response to certain symptoms.