Cohypercoagulation

[Joel1970]

Has anyone been tested or disgnosed with this condition? It seems to address a lot of the symptoms of CFS and is somewhat difficult to test. They think it is present in people with CFS, Lymes disease, MS and Gulf War Syndrome as well as many other conditions.
http://www.diagnose-me.com/symptoms-of/hypercoagulation-thickened-blood.php

 

[Mij]

@Joel1970 I did the Hemex ISAC panel many years ago with one abnormality on the panel of tests. My doctor attended one of David Bergs workshops in Arizona and Berg was convinced I had HHV6+ based on my results. If my memory serves me, one result indicated (according to Berg, he is not a doctor) that I had an "underlying infection".

I don't feel I'm in a hypercoagulative state based on my other results.

 

[Hip]

Cohypercoagulation

Is "cohypercoagulation" a typo? Did you mean "hypercoagulation"?


There is some info about blood viscosity and blood hypercoagulation in this post.

 

[Joel1970]

Yes sorry, I did a copy and paste and for some reason it added a second co in there.

 

[Hip]

Yes sorry, I did a copy and paste and for some reason it added a second co in there.

You can easily edit the thread title by clicking on Thread Tools > Edit Title towards the top right of the page.

 

[caledonia]

Ken Lassesen who ran the Yahoo group CFSFMExperimental for many years discovered he had a hypercoagulation problem and cured his ME/CFS with an antihypercoagulation drug.

http://lassesen.com/cfids/

https://beta.groups.yahoo.com/neo/groups/CFSFMExperimental/info?referrer=EGGdish

 

[ukxmrv]

I've been tested for most of the inherited forms and these have been negative. Also tried Heparin. No change to ME symptoms.

My other half (not ME) has tested positive for a couple of the inherited types. Apart from the blood clots and heart problems in his family they are all fit and well. Far better then my family with multiple ME people.

Something like this could explain early heart related deaths in CFS. We just don't know as research has been pitiful for decades.

 

[ryan31337]

Hypercoagulation is also something Dr Afrin (of MCAS fame) seems to find in many of his patients. Of course he's a haematologist so referral bias etc... but still an interesting link given the massive overlap in ME/MCAS.

 

[drob31]

I tested positive on the cyrex test for antiphospholipid antibodies. But a antiphospholipid specialist said there's no way I have it.

I have found that things like EBV and maybe HHV6 can cause these antibodies to appear. My blood doesn't appear to have this property of hypercoagulation, rather, it just creates antibodies. Also, I spoke to berg and had the test done, and he thought an infect of sorts was causing it. I worked Dr. Ruth Kriz and she ran HHV6 and EBV and mycoplasma pnemonia, and those titers were higher, especially HHV6.