August 8th, 2016: Understanding and Remembrance Day for Severe Myalgic Encephalomyelitis
Jody Smith joins with other ME voices in honor of Understanding and Remembrance Day for Severe Myalgic Encephalomyelitis.
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Chronic Illness Inclusion Project blog: Spoonie Utopia: an inclusion thought experiment

Discussion in 'Advocacy Projects' started by AndyPR, Aug 14, 2017.

  1. AndyPR

    AndyPR Senior Member

    More at http://inclusionproject.org.uk/social-model/spoonie-utopia-an-inclusion-thought-experiment/
     
  2. Snowdrop

    Snowdrop Rebel without a biscuit

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    All of a sudden in this sci fi world I'd be able to communicate with my country's/provinces health and other social services through email and there would be a dedicated person responding to me. And the process of finding how to make first contact would be transparent not something hidden in a labyrinth of details.
     
  3. Jenny TipsforME

    Jenny TipsforME Senior Member

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    I just came on PR to share some Chronic Illness Inclusion Project stuff, so great you've got there first @AndyPR :)

    @Snowdrop this seems like something that should be very achievable, my GP surgery did this for a few months but seem to have stopped it again. I could have doctor appointments via email and you could specify which doctor should read it. This was much more accessible than going into the surgery and I could take time to say exactly what I wanted to say within the word limit (though to be fair they do have phone appointments still, as long as you don't need physical tests).

    The other thing I came here to share is the chronic illness "takeover" episode of BBC Ouch! with Catherine Hale from our project and Natasha Lipman http://www.bbc.co.uk/programmes/p05...al&utm_source=twitter.com&utm_campaign=buffer

    I'll just check this hasn't been shared elsewhere and start a thread.
     

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