August 8th, 2016: Understanding and Remembrance Day for Severe Myalgic Encephalomyelitis
Jody Smith joins with other ME voices in honor of Understanding and Remembrance Day for Severe Myalgic Encephalomyelitis.
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Chronic Illness Inclusion Project blog: Spoonie Utopia: an inclusion thought experiment

Discussion in 'Advocacy Projects' started by AndyPR, Aug 14, 2017.

  1. AndyPR

    AndyPR Senior Member

    More at
  2. Snowdrop

    Snowdrop Rebel without a biscuit

    All of a sudden in this sci fi world I'd be able to communicate with my country's/provinces health and other social services through email and there would be a dedicated person responding to me. And the process of finding how to make first contact would be transparent not something hidden in a labyrinth of details.
  3. Jenny TipsforME

    Jenny TipsforME Senior Member

    I just came on PR to share some Chronic Illness Inclusion Project stuff, so great you've got there first @AndyPR :)

    @Snowdrop this seems like something that should be very achievable, my GP surgery did this for a few months but seem to have stopped it again. I could have doctor appointments via email and you could specify which doctor should read it. This was much more accessible than going into the surgery and I could take time to say exactly what I wanted to say within the word limit (though to be fair they do have phone appointments still, as long as you don't need physical tests).

    The other thing I came here to share is the chronic illness "takeover" episode of BBC Ouch! with Catherine Hale from our project and Natasha Lipman

    I'll just check this hasn't been shared elsewhere and start a thread.

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